Newborn Research, Royal Women's Hospital, Melbourne, Australia; Neonatal Medicine, Royal Children's Hospital, Melbourne, Australia; Melbourne School of Population and Global Health, University of Melbourne, Australia.
Children's Bioethics Centre, Royal Children's Hospital, Melbourne, Australia; Melbourne School of Population and Global Health, University of Melbourne, Australia.
Semin Fetal Neonatal Med. 2018 Feb;23(1):39-43. doi: 10.1016/j.siny.2017.09.007. Epub 2017 Sep 28.
The neonatal intensive care unit is recognized as a stressful environment; the nature of caring for sick babies with uncertain outcomes and the need to make difficult decisions results in a work place where moral distress is prevalent. According to the prevailing definition, moral distress occurs when the provider believes that what is "done" is not the right course of action, with an element of constraint: the provider has no choice but to act this way. This can lead to adverse outcomes, including burnout and a change of career. Traditionally, moral distress was considered to represent a misuse of power that forced nurses (typically) to provide burdensome treatments they believed not in the patient's best interests. Today, with shared decision-making, it is rare for physicians to act in a purely paternalistic fashion and impose management strategies on a team and parents. However, in the grey zones, it is not unusual for individuals with different values to disagree on a course of treatment. Healthcare professionals across all disciplines may feel constrained despite there being no identified misuse of power. We argue for a broader understanding of moral distress and an awareness that maladaptive responses to moral distress may result in "transference" of moral distress on to other healthcare professionals and even on to the families of babies for whom we have a duty of care. Strategies for dealing with moral distress exist. An appreciation of these dynamics will enable providers to reduce the negative impacts of moral distress while also using it as a vehicle for constructive discussion and progressive thought that will better serve our patients and our colleagues.
新生儿重症监护病房被认为是一个充满压力的环境;照顾病情不确定的婴儿的性质以及做出艰难决策的需要,导致工作场所普遍存在道德困境。根据流行的定义,当提供者认为“所做的”不是正确的行动方案,并且存在一定的限制因素时,就会出现道德困境:提供者别无选择,只能这样做。这可能导致不良后果,包括倦怠和职业改变。传统上,道德困境被认为是权力滥用的表现,迫使护士(通常)提供他们认为不符合患者最佳利益的繁重治疗。如今,随着共同决策,医生很少以纯粹的家长式作风行事,并将管理策略强加给团队和家长。然而,在灰色地带,不同价值观的人对治疗方案存在分歧并不罕见。尽管没有发现权力滥用,但所有学科的医疗保健专业人员都可能感到受到限制。我们主张更广泛地理解道德困境,并认识到对道德困境的适应不良反应可能导致“转移”道德困境到其他医疗保健专业人员,甚至转移到我们有护理责任的婴儿的家庭。应对道德困境的策略是存在的。对这些动态的理解将使提供者能够减轻道德困境的负面影响,同时将其用作建设性讨论和进步思想的工具,以更好地为我们的患者和同事服务。