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神经病学中的姑息治疗。

Palliative Care in Neurology.

机构信息

Department of Neurology, Mayo Clinic, Jacksonville, FL.

Department of Neurology, University of Rochester Medical Center, Rochester, NY.

出版信息

Mayo Clin Proc. 2017 Oct;92(10):1592-1601. doi: 10.1016/j.mayocp.2017.08.003.

Abstract

Palliative medicine is a specialty that focuses on improving the quality of life for patients with serious or advanced medical conditions, and it is appropriate at any stage of disease, including at the time of diagnosis. Neurologic conditions tend to have high symptom burdens, variable disease courses, and poor prognoses that affect not only patients but also their families and caregivers. Patients with a variety of neurologic conditions such as Parkinson disease, dementia, amyotrophic lateral sclerosis, brain tumors, stroke, and acute neurologic illnesses have substantial unmet needs that can be addressed through a combination of primary and specialty palliative care. The complex needs of these patients are ideally managed with a comprehensive approach to care that addresses the physical, psychological, social, and spiritual aspects of care in an effort to reduce suffering. Early discussions about prognosis, goals of care, and advance care planning are critical as they can provide guidance for treatment decisions and allow patients to retain a sense of autonomy despite progressive cognitive or functional decline. With the rapid growth in palliative care across the United States, there are opportunities to improve the palliative care knowledge of neurology trainees, the delivery of palliative care to patients with neurologic disease by both neurologists and nonneurologists, and the research agenda for neuropalliative care.

摘要

缓和医学是一门专注于提高患有严重或晚期疾病患者生活质量的专业,它适用于疾病的任何阶段,包括诊断时。神经疾病往往具有高症状负担、多变的疾病过程和不良预后,不仅影响患者,还影响他们的家人和护理人员。患有各种神经疾病的患者,如帕金森病、痴呆、肌萎缩侧索硬化症、脑肿瘤、中风和急性神经疾病,有大量未满足的需求,可以通过初级和专科姑息治疗相结合来满足。这些患者的复杂需求最好通过综合护理方法来管理,以解决护理的身体、心理、社会和精神方面,以减轻痛苦。早期讨论预后、护理目标和预先护理计划至关重要,因为它们可以为治疗决策提供指导,并允许患者尽管认知或功能逐渐下降,但仍保持自主权。随着美国姑息治疗的快速发展,有机会提高神经科受训者的姑息治疗知识,提高神经科医生和非神经科医生对神经疾病患者的姑息治疗水平,并制定神经姑息治疗研究议程。

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