1 University at Buffalo, Buffalo, New York, USA.
Qual Health Res. 2018 Jan;28(1):87-97. doi: 10.1177/1049732317732963. Epub 2017 Oct 11.
Caregivers of those with life-limiting illness face many complicated tasks, including providing direct patient care, communicating with professionals, and managing the logistical demands of daily activities. To assist with caregiving responsibilities, caregivers require social support from social network members at all points in the illness process. This study analyzes themes from interviews with 61 caregivers of patients enrolled in hospice services to identify the types of support caregivers mobilize from new social network members for social support during the end-of-life care process. Themes indicate that caregivers receive accessible, immediate, caregiver-centered emotional support from hospice health care professionals, and situationally tailored, understandable informational support from other types of professionals. In addition, caregivers received overlapping emotional and informational support from hospice health care professionals. Findings enhance the understanding of how caregivers receive tailored emotional and informational support.
临终关怀患者的护理人员面临许多复杂的任务，包括提供直接的患者护理、与专业人员沟通以及管理日常活动的后勤需求。为了协助护理人员履行职责，他们在疾病过程的各个阶段都需要社会网络成员提供社会支持。本研究通过对 61 名参与临终关怀服务的患者护理人员的访谈进行主题分析，确定了护理人员在临终关怀过程中从新的社会网络成员那里调动的支持类型，以获得社会支持。主题表明，护理人员从临终关怀医疗保健专业人员那里获得了可及的、即时的、以护理人员为中心的情感支持，以及其他类型的专业人员提供的因情况而异的、易于理解的信息支持。此外，护理人员还从临终关怀医疗保健专业人员那里获得了重叠的情感和信息支持。研究结果增强了对护理人员如何获得量身定制的情感和信息支持的理解。
