O'Connor Claire M, Clemson Lindy, Brodaty Henry, Low Lee-Fay, Jeon Yun-Hee, Gitlin Laura N, Piguet Olivier, Mioshi Eneida
a Ageing, Work & Health Research Unit, Faculty of Health Sciences , University of Sydney , Sydney , Australia.
b Centre of Excellence in Population Ageing Research , University of Sydney , Sydney , Australia.
Disabil Rehabil. 2019 Feb;41(3):299-310. doi: 10.1080/09638288.2017.1387614. Epub 2017 Oct 15.
To explore the feasibility of implementing the Tailored Activity Program with a cohort of people with frontotemporal dementia and their carers (dyads).
The Tailored Activity Program is an occupational therapy based intervention that involves working collaboratively with family carers and prescribes personalized activities for behavioral management in people with dementia. Twenty dyads randomized into the study (Tailored Activity Program: n = 9; Control: n = 11) were assessed at baseline and 4-months. Qualitative analyzes evaluated feasibility and acceptability of the program for the frontotemporal dementia cohort, and quantitative analyzes (linear mixed model analyzes, Spearman's rho correlations) measured the impact of the program on the dyads.
The Tailored Activity Program was an acceptable intervention for the frontotemporal dementia dyads. Qualitative analyses identified five themes: "carer perceived benefits", "carer readiness to change", "strategies used by carer to engage person with dementia", "barriers to the Tailored Activity Program uptake/implementation", and "person with dementia engagement". Quantitative outcomes showed an overall reduction of behavioral symptoms (F = 8.073, p = 0.011) and maintenance of functional performance in the person with dementia (F = 0.375, p = 0.548).
This study demonstrates the potential for using an activity-based intervention such as the Tailored Activity Program in frontotemporal dementia. Service providers should recognize that while people with frontotemporal dementia present with challenging issues, tailored therapies may support their function and reduce their behavioral symptoms. Implications for rehabilitation The Tailored Activity Program is an occupational therapy based intervention that involves prescribing personalized activities for behavioral management in dementia. The Tailored Activity Program is an acceptable and feasible intervention approach to address some of the unique behavioral and functional impairments inherent in frontotemporal dementia.
探讨对一组额颞叶痴呆患者及其照料者（配对组合）实施定制活动计划的可行性。
定制活动计划是一种基于职业疗法的干预措施，包括与家庭照料者合作，并为痴呆患者的行为管理制定个性化活动。将20个配对组合随机分为研究组（定制活动计划组：n = 9；对照组：n = 11），在基线期和4个月时进行评估。定性分析评估该计划对额颞叶痴呆患者群体的可行性和可接受性，定量分析（线性混合模型分析、斯皮尔曼等级相关分析）测量该计划对配对组合的影响。
定制活动计划对于额颞叶痴呆配对组合而言是一种可接受的干预措施。定性分析确定了五个主题：“照料者感知到的益处”、“照料者对改变的准备程度”、“照料者促使痴呆患者参与的策略”、“定制活动计划采用/实施的障碍”以及“痴呆患者的参与度”。定量结果显示行为症状总体减轻（F = 8.073，p = 0.011），且痴呆患者的功能表现得以维持（F = 0.375，p = 0.548）。
本研究证明了在额颞叶痴呆中使用基于活动的干预措施（如定制活动计划）的潜力。服务提供者应认识到，虽然额颞叶痴呆患者存在具有挑战性的问题，但定制疗法可能有助于维持其功能并减轻其行为症状。对康复的启示 定制活动计划是一种基于职业疗法的干预措施，包括为痴呆患者的行为管理制定个性化活动。定制活动计划是一种可接受且可行的干预方法，可解决额颞叶痴呆固有的一些独特行为和功能障碍。
