Skibo M, Guillen U, Zhang H, Munson D, Mackley A, Nilan K, Kirpalani H
Division of Neonatology, Crozer Keystone Health System, Upland, PA, USA.
Division of Neonatology, Christiana Care Health System, Newark, DE, USA.
J Perinatol. 2017 Dec;37(12):1341-1345. doi: 10.1038/jp.2017.141. Epub 2017 Oct 19.
To develop and test a decision aid for counseling parents of children with bronchopulmonary dysplasia (BPD).Local problem:Parental education about complex conditions is not standardized and communication and understanding may not be adequate.
Semi-structured interviews were conducted with 33 neonatal clinicians and 12 parents of children with BPD using a qualitative research design. The interviews were used to identify education topics that were felt to be important in BPD education. These topics were then used to create a visual decision aid to be used in counseling sessions with parents. The decision aid was then used in mock counseling sessions with 15 'experienced' participants and 7 'naïve' participants to assess its efficacy. The participants completed a pre and post test to assess change in knowledge as well as an 11-question Likert style acceptability survey.
Implementation of a decision aid while educating parents about BPD.
Topics identified during the interviews were used to create eight educational cards which included pictures, pictographs and statistics. Overall, participants thought the decision aid contained an appropriate amount of information, were easy to understand and improved their knowledge about BPD. Testing demonstrated a significant increase in knowledge in both the 'experienced' (P<0.0001) and 'naïve' group (P=0.0064).
A decision aid for parents of children with BPD may improve understanding of the condition and help facilitate communication between parents and doctors.
开发并测试一种用于为支气管肺发育不良（BPD）患儿家长提供咨询的决策辅助工具。当地问题：针对复杂病症的家长教育未标准化，沟通与理解可能不足。
采用定性研究设计，对33名新生儿科临床医生和12名BPD患儿家长进行了半结构化访谈。访谈用于确定在BPD教育中被认为重要的教育主题。然后利用这些主题创建了一个视觉决策辅助工具，用于与家长的咨询会议。该决策辅助工具随后在与15名“有经验的”参与者和7名“无经验的”参与者的模拟咨询会议中使用，以评估其效果。参与者完成了测试前和测试后的知识评估，以及一项11个问题的李克特式可接受性调查。
在向家长介绍BPD的同时实施决策辅助工具。
访谈中确定的主题被用于制作八张教育卡片，其中包括图片、象形图和统计数据。总体而言，参与者认为决策辅助工具包含了适量的信息，易于理解，并提高了他们对BPD的认识。测试表明，“有经验的”组（P<0.0001）和“无经验的”组（P=0.0064）的知识都有显著增加。
为BPD患儿家长提供的决策辅助工具可能会增进对该病症的理解，并有助于促进家长与医生之间的沟通。
