特应性皮炎的心理社会影响

The Psychosocial Impact of Atopic Dermatitis.

作者信息

Gochnauer Heather, Valdes-Rodriguez Rodrigo, Cardwell Leah, Anolik Rachel B

机构信息

Section of Dermatology, Reading Health Physician Network, Wyomissing, PA, USA.

Department of Dermatology, Lewis Katz School of Medicine at Temple University, Philadelphia, PA, USA.

出版信息

Adv Exp Med Biol. 2017;1027:57-69. doi: 10.1007/978-3-319-64804-0_6.

DOI:10.1007/978-3-319-64804-0_6

PMID:29063431

Abstract

Atopic dermatitis is a chronic skin condition which has significant psychosocial and quality of life impact. The condition causes physical discomfort, emotional distress, embarrassment, social stigma and daily activity limitation. In an effort to assess these aspects of disease burden, quality of life measurement tools were developed. Through use of these tools, we have expanded our knowledge of the psychosocial and quality of life burden of this condition. A variety of quality of life assessment tools exist, yet there is no consensus on which tool is best suited to assess the quality of life impact of atopic dermatitis. Research studies assessing quality of life in atopic dermatitis patients utilize a variety of quality of life measurement tools; this complicates comparisons across research studies. Though comparison across studies is difficult, the data echoes tremendous overall burden of disease, especially pertaining to psychosocial status and life quality.

摘要

特应性皮炎是一种慢性皮肤病，对心理社会和生活质量有重大影响。这种疾病会导致身体不适、情绪困扰、尴尬、社会污名化以及日常活动受限。为了评估疾病负担的这些方面，人们开发了生活质量测量工具。通过使用这些工具，我们扩展了对这种疾病心理社会和生活质量负担的认识。存在多种生活质量评估工具，但对于哪种工具最适合评估特应性皮炎对生活质量的影响尚无共识。评估特应性皮炎患者生活质量的研究使用了多种生活质量测量工具；这使得不同研究之间的比较变得复杂。尽管跨研究比较很困难，但数据显示出巨大的总体疾病负担，尤其是在心理社会状况和生活质量方面。