Gillis J, Tibballs J, McEniery J, Heavens J, Hutchins P, Kilham H A, Henning R
Children's Hospital Camperdown, NSW.
Med J Aust. 1989 Jan 2;150(1):10-4. doi: 10.5694/j.1326-5377.1989.tb136311.x.
The issue of the ventilator-dependent child is a relatively-new one in Australia. Ventilator-dependent children pose complex and unique ethical, medical, economic and psychological problems. The experience of two Australian centres that are involved with the care of ventilator-dependent children is reported. Most of these children now are being cared for at home. Aspects of home care are outlined. After the initial period, the technical aspects are not a problem for most parents for whom the major issues are the provision and funding of nursing support. The complex ethical issues that are involved are discussed. It is concluded that undergoing ventilation at home rather than in a hospital appears to make the best of an otherwise almost-intolerable situation for ventilator-dependent children, but that much more information is required about the outcome for these children and the long-term psychosocial impact of this treatment.
在澳大利亚,依赖呼吸机的儿童问题是一个相对较新的问题。依赖呼吸机的儿童带来了复杂而独特的伦理、医学、经济和心理问题。本文报道了澳大利亚两个参与照顾依赖呼吸机儿童的中心的经验。现在,这些儿童大多在家中接受护理。文中概述了家庭护理的各个方面。在初始阶段之后,技术方面对大多数家长来说不是问题,他们面临的主要问题是护理支持的提供和资金。文中讨论了其中涉及的复杂伦理问题。得出的结论是,在家中而非医院接受通气治疗似乎能让依赖呼吸机的儿童在原本几乎无法忍受的情况下得到最好的结果,但对于这些儿童的治疗结果以及这种治疗的长期社会心理影响,还需要更多信息。