Martínez-Lage Pablo, Martín-Carrasco Manuel, Arrieta Enrique, Rodrigo Jesús, Formiga Francesc
Centro de Investigación y Terapias Avanzadas, Fundación CITA-Alzheimer Fundazioa, San Sebastián, España.
Clínica Psiquiátrica Padre Menni, Grupo de demencias de la Sociedad Española de Psiquiatría, Pamplona, España; Grupo de demencias de la Sociedad Española de Psiquiatría, España.
Rev Esp Geriatr Gerontol. 2018 Jan-Feb;53(1):26-37. doi: 10.1016/j.regg.2017.07.006. Epub 2017 Oct 27.
In the current context of increased life expectancy and progressive aging of the population a very significant increase in the number of people with cognitive impairment and dementia is expected. Consequently, Spain will face an enormous social and health problem in the next decades. The Mapa de la enfermedad de Alzheimer y otras demencias en España project aims to analyse plans, prevention and early diagnosis activities, process of care and resources available across the 17 Spanish regions for the management of cognitive impairment and dementia in order to identify improvement areas, as well as to provide a list of recommendations.
The working group consisted of an Advisory Committee of 5 national experts and a Committee of Experts from each region made up of professionals in the field of Neurology, Geriatrics, Psychiatry, and Primary Care, as well as representatives of Family Associations of People with Alzheimer's and other dementias. The Expert Committee of each region held meetings in which the current situation of care was reviewed.
Plans available in Spain for dementia management are mostly obsolete or have not been implemented. Prevention and early detection activities are generally not carried out. There is great variability of care process that patients must follow for the diagnosis, treatment, and follow-up of the disease, and not all diagnostic test are available in different regions. In general, resources are considered scarce and unknown.
The Mapa de la enfermedad de Alzheimer y otras demencias en España study has been able to detect the main points that require changing n the management, organisation, and coordination of resources, such as information and training of the personnel involved. Furthermore, the study has revealed that, in Spain, the necessary conditions are in place in Spain, such as the availability and capacity of professionals involved, as well as there being the potential diagnostic and health care resources to address this room for improvement through the approval and development of a National Alzheimer's Plan, supported by a deep and truthful political commitment, which will be the ideal framework for the development of these possibilities.
在当前预期寿命增加和人口逐渐老龄化的背景下,认知障碍和痴呆症患者的数量预计将大幅增加。因此,西班牙在未来几十年将面临巨大的社会和健康问题。西班牙阿尔茨海默病及其他痴呆症地图项目旨在分析西班牙17个地区用于管理认知障碍和痴呆症的计划、预防和早期诊断活动、护理流程及可用资源,以确定改进领域,并提供一份建议清单。
工作组由一个由5名国家专家组成的咨询委员会和每个地区的专家委员会组成,后者由神经学、老年医学、精神病学和初级保健领域的专业人员以及阿尔茨海默病和其他痴呆症患者家庭协会的代表组成。每个地区的专家委员会召开会议,审查护理现状。
西班牙现有的痴呆症管理计划大多过时或未得到实施。预防和早期检测活动普遍未开展。患者在疾病诊断、治疗和随访过程中必须遵循的护理流程差异很大,而且并非所有诊断测试在不同地区都能进行。总体而言,资源被认为稀缺且不明。
西班牙阿尔茨海默病及其他痴呆症地图研究能够发现管理、组织和资源协调方面需要改变的要点,比如相关人员的信息和培训。此外,该研究表明,西班牙具备必要条件,如相关专业人员的可用性和能力,以及潜在的诊断和医疗资源,通过批准和制定一项由坚定而真诚的政治承诺支持的国家阿尔茨海默病计划来解决这一改进空间,这将是开发这些可能性的理想框架。