Li Chin-Ching, Lin Hung-Ru, Tsai Ming-Dar, Tsay Shiow-Luan
PhD, RN, Assistant Professor, Department of Nursing, Mackay Medical College.
PhD, RN, Professor, School of Nursing, National Taipei University of Nursing and Health Sciences.
J Nurs Res. 2018 Aug;26(4):280-287. doi: 10.1097/jnr.0000000000000227.
Neuropathic pain (NP) is a common, severe problem that affects spinal cord injury (SCI) patients. Only SCI patients truly understand the impact and extent of this type of pain.
The aim of this study was to understand the NP experienced by SCI patients and the influence of this type of pain on their daily life.
A qualitative design was used. An interview guide including a semistructured questionnaire and in-depth interviews was conducted with SCI patients with NP in a neurorehabilitation department at a medical center in northern Taiwan. The data were collected using a purposive sampling method. Content analysis was performed on the interview data, which were obtained from 13 SCI patients with NP.
Three themes and eight subthemes were identified that described the NP experience of the participants and the influence of NP on their daily life. The three themes included elusive pain (changing and individual pain sensations, erratically haunting threat, and phantom limb sensations), complicated feelings about pain (converting depression into an active attitude toward life, having feelings of anticipation and anxiety about future pain relief, and facing and experiencing pain), and renewed hope (bravely fighting pain and seeking pain relief methods).
This study revealed three important themes of NP experienced by SCI patients, including elusive pain, complicated feelings about pain, and renewed hope. Nurses should understand the nature of NP, provide a thorough pain assessment, and design a proper pain management plan to care effectively for patients with NP.
神经性疼痛(NP)是一个常见且严重的问题,影响着脊髓损伤(SCI)患者。只有SCI患者真正了解这类疼痛的影响和程度。
本研究旨在了解SCI患者所经历的神经性疼痛以及这类疼痛对其日常生活的影响。
采用质性研究设计。在台湾北部一家医疗中心的神经康复科,对患有神经性疼痛的SCI患者进行了包括半结构化问卷和深度访谈的访谈指南。数据采用立意抽样法收集。对从13例患有神经性疼痛的SCI患者获得的访谈数据进行了内容分析。
确定了三个主题和八个子主题,描述了参与者的神经性疼痛经历以及神经性疼痛对其日常生活的影响。这三个主题包括难以捉摸的疼痛(变化的和个体的疼痛感觉、反复无常的困扰威胁以及幻肢感觉)、对疼痛的复杂感受(将抑郁转化为对生活的积极态度、对未来疼痛缓解有期待和焦虑的感觉以及面对和体验疼痛)以及重拾希望(勇敢地与疼痛作斗争并寻求缓解疼痛的方法)。
本研究揭示了SCI患者所经历的神经性疼痛的三个重要主题,包括难以捉摸的疼痛、对疼痛的复杂感受以及重拾希望。护士应了解神经性疼痛的本质,进行全面的疼痛评估,并设计适当的疼痛管理计划,以有效地护理神经性疼痛患者。