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利用 PROMIS 比较儿科的自我报告和家长代理报告:来自脊骨神经医学实践研究网络的结果。

Comparison of pediatric self reports and parent proxy reports utilizing PROMIS: Results from a chiropractic practice-based research network.

机构信息

The International Chiropractic Pediatric Association, Media, PA, USA; Life Chiropractic College West, Hayward, CA, USA; 6017 Snell Avenue, Suite 441, San Jose, 95123, CA, USA.

The International Chiropractic Pediatric Association, Media, PA, USA; Private Practice of Chiropractic, 327 N Middletown Rd, Media, 19063, PA, USA.

出版信息

Complement Ther Clin Pract. 2017 Nov;29:48-52. doi: 10.1016/j.ctcp.2017.08.003. Epub 2017 Aug 31.

DOI:10.1016/j.ctcp.2017.08.003
PMID:29122268
Abstract

OBJECTIVE

To measure the cross-informant variant of pediatric quality of life (QoL) based on self-reports and parent proxy measures.

METHODS

A secondary analysis of baseline data obtained from two independent studies measuring the QoL based on the pediatric PROMIS-25 self-report and the PROMIS parent-proxy items banks. A scoring manual associated raw scores to a T score metric (mean = 50; SD = 10). Reliability of QoL ratings utilized the ICC while comparison of mean T Scores utilized the unpaired t-test.

RESULTS

A total of 289 parent-child dyads comprised our study responders. Average age for parents and children was 41.27 years and 12.52 years, respectively. The mean T score (child self-report: parent proxy) for each QoL domains were: mobility (50.82:52.58), anxiety (46.73:44.21), depression (45.18:43.60), fatigue (45.59:43.92), peer-relationships (52.15:52.88) and pain interference (47.47:44.80).

CONCLUSION

Parents tend to over-estimate their child's QoL based on measures of anxiety, depression, fatigue, peer-relationships and pain interference.

摘要

目的

基于自我报告和家长代理测量,衡量儿科生活质量(QoL)的跨报告者变异。

方法

对两项独立研究的基线数据进行二次分析,这些研究基于儿科 PROMIS-25 自我报告和 PROMIS 家长代理项目库来衡量 QoL。评分手册将原始分数与 T 分数量表(平均值= 50;标准差= 10)相关联。QoL 评分的可靠性利用 ICC 进行评估,而 T 分数均值的比较则利用非配对 t 检验。

结果

共有 289 对父母-子女构成了我们的研究应答者。父母和儿童的平均年龄分别为 41.27 岁和 12.52 岁。每个 QoL 领域的平均 T 分数(儿童自我报告:家长代理)为:移动性(50.82:52.58)、焦虑(46.73:44.21)、抑郁(45.18:43.60)、疲劳(45.59:43.92)、同伴关系(52.15:52.88)和疼痛干扰(47.47:44.80)。

结论

基于焦虑、抑郁、疲劳、同伴关系和疼痛干扰的测量,家长往往会高估他们孩子的 QoL。

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