利用 PROMIS 比较儿科的自我报告和家长代理报告：来自脊骨神经医学实践研究网络的结果。
Comparison of pediatric self reports and parent proxy reports utilizing PROMIS: Results from a chiropractic practice-based research network.
机构信息
The International Chiropractic Pediatric Association, Media, PA, USA; Life Chiropractic College West, Hayward, CA, USA; 6017 Snell Avenue, Suite 441, San Jose, 95123, CA, USA.
The International Chiropractic Pediatric Association, Media, PA, USA; Private Practice of Chiropractic, 327 N Middletown Rd, Media, 19063, PA, USA.
出版信息
Complement Ther Clin Pract. 2017 Nov;29:48-52. doi: 10.1016/j.ctcp.2017.08.003. Epub 2017 Aug 31.
OBJECTIVE
To measure the cross-informant variant of pediatric quality of life (QoL) based on self-reports and parent proxy measures.
METHODS
A secondary analysis of baseline data obtained from two independent studies measuring the QoL based on the pediatric PROMIS-25 self-report and the PROMIS parent-proxy items banks. A scoring manual associated raw scores to a T score metric (mean = 50; SD = 10). Reliability of QoL ratings utilized the ICC while comparison of mean T Scores utilized the unpaired t-test.
RESULTS
A total of 289 parent-child dyads comprised our study responders. Average age for parents and children was 41.27 years and 12.52 years, respectively. The mean T score (child self-report: parent proxy) for each QoL domains were: mobility (50.82:52.58), anxiety (46.73:44.21), depression (45.18:43.60), fatigue (45.59:43.92), peer-relationships (52.15:52.88) and pain interference (47.47:44.80).
CONCLUSION
Parents tend to over-estimate their child's QoL based on measures of anxiety, depression, fatigue, peer-relationships and pain interference.
目的
基于自我报告和家长代理测量，衡量儿科生活质量（QoL）的跨报告者变异。
方法
对两项独立研究的基线数据进行二次分析，这些研究基于儿科 PROMIS-25 自我报告和 PROMIS 家长代理项目库来衡量 QoL。评分手册将原始分数与 T 分数量表（平均值= 50；标准差= 10）相关联。QoL 评分的可靠性利用 ICC 进行评估，而 T 分数均值的比较则利用非配对 t 检验。
结果
共有 289 对父母-子女构成了我们的研究应答者。父母和儿童的平均年龄分别为 41.27 岁和 12.52 岁。每个 QoL 领域的平均 T 分数（儿童自我报告：家长代理）为：移动性（50.82：52.58）、焦虑（46.73：44.21）、抑郁（45.18：43.60）、疲劳（45.59：43.92）、同伴关系（52.15：52.88）和疼痛干扰（47.47：44.80）。
结论
基于焦虑、抑郁、疲劳、同伴关系和疼痛干扰的测量，家长往往会高估他们孩子的 QoL。
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