Szymanski Konrad M, Hensel Devon J, Wiener John S, Whittam Benjamin, Cain Mark P, Misseri Rosalia
Division of Pediatric Urology, Riley Hospital for Children at Indiana University Health, Indianapolis, IN, USA.
Department of Pediatrics and Department of Sociology, Indiana University School of Medicine and Indiana University Purdue University Indianapolis, Indianapolis, IN, USA.
J Pediatr Rehabil Med. 2017 Dec 11;10(3-4):313-317. doi: 10.3233/PRM-170462.
Sexuality has received little attention in spina bifida (SB) care. The aim of this study was to assess sexual identity and orientation in adults with SB.
An international online survey to adults with SB was administered over 10-months (recruitment: SB clinics, SB organizations via social media). Collected data included demographics, sexual identity and orientation. Non-parametric tests were used for analysis.
Median age of 77 men and 119 women was 35 years old (52.0% shunted, 48.5% community ambulators, 42.3% outside United States). Most commonly, men identified as male (96.1%), while 1.3% each described themselves as female, transgender and other. All women reporting sexual identity identified as female (99.2%), 0.8% not providing an answer. Most men reported heterosexual orientation (89.6%), followed by gay (7.8%) and bisexual (2.6%). Most women reported heterosexual orientation (84.9%), followed by bisexual (10.4%), gay/lesbian (2.5%), asexual (0.8%) and other (1.7%).
As in the general population, sexual identity typically coincides with biological gender. Sexual orientation of adults with SB mirrors the general population. Due to self-selection, these findings likely do not reflect exact prevalence in the SB population.
性取向在脊柱裂（SB）护理中很少受到关注。本研究的目的是评估成年脊柱裂患者的性身份和性取向。
在10个月内对成年脊柱裂患者进行了一项国际在线调查（招募方式：通过社交媒体联系脊柱裂诊所、脊柱裂组织）。收集的数据包括人口统计学信息、性身份和性取向。采用非参数检验进行分析。
77名男性和119名女性的年龄中位数为35岁（52.0%接受分流手术，48.5%能在社区行走，42.3%来自美国以外地区）。最常见的情况是，男性认定自己为男性（占96.1%），而分别有1.3%的人将自己描述为女性、跨性别者和其他。所有报告了性身份的女性都认定自己为女性（占99.2%），0.8%未作答。大多数男性报告为异性恋取向（占89.6%），其次是同性恋（占7.8%）和双性恋（占2.6%）。大多数女性报告为异性恋取向（占84.9%），其次是双性恋（占10.4%）、男同性恋/女同性恋（占2.5%）、无性恋（占0.8%）和其他（占1.7%）。
与普通人群一样，性身份通常与生理性别相符。脊柱裂成年患者的性取向与普通人群相似。由于存在自我选择因素，这些研究结果可能无法反映脊柱裂人群中的实际患病率。
