Johansson E, Larsson Y, Ludvigsson J
Acta Paediatr Scand Suppl. 1979;275:85-7. doi: 10.1111/j.1651-2227.1979.tb06165.x.
A sample of 36 juvenile diabetics, age 19--28 years, and with a duration of diabetes of 14--17 years were interviewed with regard to their social adaptation. Five patients could not be traced and six patients did not want to participate. Educational and professional careers were normal. However, none had received individual diabetes-oriented vocational guidance. A majority of patients was unsatisfied with the information given at the diabetic clinics, and a negative attitude towards society and its institutions was common. Patients often felt that as children they had been neglected by the diabetic team, while their parents received all information. It is concluded that diabetic children and adolescents require continuous socio-psychological support, that psychologists and/or social workers should be permanent members of the diabetic teams, and that paediatricians should follow diabetic patients until they are fully grown up.
对36名年龄在19至28岁、患糖尿病14至17年的青少年糖尿病患者进行了关于社会适应情况的访谈。5名患者无法找到,6名患者不愿参与。他们的教育和职业经历正常。然而,没有人接受过针对糖尿病的个人职业指导。大多数患者对糖尿病诊所提供的信息不满意,对社会及其机构持消极态度很常见。患者经常觉得自己小时候被糖尿病治疗团队忽视了,而所有信息都给了他们的父母。结论是糖尿病儿童和青少年需要持续的社会心理支持,心理学家和/或社会工作者应成为糖尿病治疗团队的常设成员,儿科医生应跟踪糖尿病患者直至他们成年。