Goldberg A I, Monahan C A
Department of Anesthesia and Pediatrics, Northwestern University Medical School, Chicago, IL.
J Pediatr. 1989 Mar;114(3):378-83. doi: 10.1016/s0022-3476(89)80554-2.
To obtain the physician's perspective concerning their care of children at home who required prolonged life-supportive medical technology, we conducted a mailed survey of 126 physicians caring for 25 children assisted by ventilators who had been discharged from 11 Illinois hospitals to their homes. The 51 (41%) physicians who responded included those practicing in many specialties from a variety of hospital settings throughout Illinois. The majority of respondents had less than 4 years' experience with ventilator-assisted children and were in their earlier years of practice. Most physicians surveyed had participated in discharge planning and maintained an active role with their patients at home after discharge. The majority believed that changes in ventilatory settings could be accomplished in the home and found hospitalization unnecessary for adjustments of the home care prescription. The physicians thought that the roles and responsibilities should be defined for both the tertiary and community-based physician before hospital discharge, and that development and support of resources at the community level were essential for the success of home care.
为了解医生对于在家中使用延长生命支持医疗技术的儿童护理的看法，我们对126名医生进行了邮寄调查，这些医生负责照顾从伊利诺伊州11家医院出院回家、依靠呼吸机辅助的25名儿童。回复的51名（41%）医生包括来自伊利诺伊州各地不同医院环境、多个专业领域的从业者。大多数受访者对使用呼吸机辅助的儿童的经验不足4年，且处于职业生涯早期。大多数接受调查的医生参与了出院计划制定，并在患者出院后在家中继续积极发挥作用。大多数人认为可以在家中完成通气设置的调整，认为因调整家庭护理处方而住院没有必要。医生们认为，应在出院前明确三级医疗机构医生和社区医生的角色与职责，并且社区层面资源的开发与支持对于家庭护理的成功至关重要。
