Lewis C C, Pantell R H, Kieckhefer G M
Department of Pediatrics and Psychiatry, University of California, San Francisco 94143-0314.
Med Care. 1989 Mar;27(3 Suppl):S54-65. doi: 10.1097/00005650-198903001-00005.
The assessment of children's health status presents unique difficulties. These include parent-child differences in reports of functioning, knowledge of what constitutes age-appropriate functioning, obtainment of accurate information for child, and demonstration of the predictivity of health status measures. Recent measures (the Functional Status II-R and instruments from the RAND Health Insurance Experiment) address physical, social, and psychologic domains of children's health. The authors modified these instruments to develop short (7 and 14 items) questionnaires (RAND, FSQ) to assess child health. Scoring on these questionnaires was compared with traditional measures of illness severity and medical service utilization. The authors also evaluated coding illness-specific and general health limitations (FSQ-S and FSQ-G, respectively). Patients included the parents of 113 children with chronic illness (100 asthmatics). Measure stability was evaluated over a 6-month period in a subset of patients. Internal consistency (Cronbach's alpha) of the seven-item RAND measure was .78, the FSQ-S .78, and the FSQ-G .73 to .89 during repeated samplings over 6 months. The FSQ-S and Rand seven-item measure were moderately correlated (.47, P less than .001). The authors observed significant correlations among alternate codings of the FSQ and RAND and between the FSQ-S, FSQ-G, RAND, and severity measure with traditional indices of medical service utilization. Parents were more likely to attribute certain functional status problems (e.g., being tired) to illness than they were other problems (e.g., moodiness or interest in things). The findings demonstrate that these measures have acceptable psychometric properties and provide preliminary evidence of construct validity in a group of young children with asthma. Using general and specific measures will provide differing pictures of a child's functioning. No single measure completely taps the impact of illness as measured by a panel of traditional indicators of illness burden and medical service utilization.
儿童健康状况的评估存在独特的困难。这些困难包括亲子在功能报告方面的差异、对何为适合儿童年龄功能的了解、获取儿童准确信息以及证明健康状况测量的预测性。近期的测量方法(功能状态II-R以及兰德健康保险实验中的工具)涉及儿童健康的身体、社会和心理领域。作者对这些工具进行了修改,以开发简短(7项和14项)问卷(兰德,FSQ)来评估儿童健康。将这些问卷的得分与疾病严重程度和医疗服务利用的传统测量方法进行了比较。作者还评估了针对特定疾病和一般健康限制的编码(分别为FSQ-S和FSQ-G)。患者包括113名慢性病患儿(100名哮喘患儿)的父母。在一部分患者中对测量的稳定性进行了为期6个月的评估。在6个月的重复抽样过程中,七项兰德测量的内部一致性(克朗巴赫α系数)为0.78,FSQ-S为0.78,FSQ-G为0.73至0.89。FSQ-S与兰德七项测量呈中度相关(0.47,P小于0.001)。作者观察到FSQ和兰德的替代编码之间以及FSQ-S、FSQ-G、兰德与医疗服务利用的传统指标的严重程度测量之间存在显著相关性。与其他问题(如喜怒无常或对事物的兴趣)相比,父母更有可能将某些功能状态问题(如疲劳)归因于疾病。研究结果表明,这些测量方法具有可接受的心理测量特性,并为一组哮喘幼儿的结构效度提供了初步证据。使用综合和特定的测量方法会呈现儿童功能的不同情况。没有单一的测量方法能完全反映疾病的影响,而疾病影响是由一组传统的疾病负担和医疗服务利用指标来衡量的。