了解艾滋病毒感染者的健康素养：学习场所
Understanding Health Literacy for People Living With HIV: Locations of Learning.
作者信息
Lindgren Teri G, Reyes Darcel, Eller Lucille, Wantland Dean, Portillo Carmen, Holzemer William L, Matshediso Ellah, Corless Inge, Kemppainen Jeanne, Mogobe K Dintle, Webel Allison, Nokes Kathleen, Nicholas Patrice, Rivero Mendez Marta, Reid Paula, Baez Solymar Solis, Johnson Mallory O, Cuca Yvette, Rose Carol Dawson
出版信息
J Assoc Nurses AIDS Care. 2018 Mar-Apr;29(2):190-203. doi: 10.1016/j.jana.2017.10.007. Epub 2017 Nov 8.
Health literacy, including people's abilities to access, process, and comprehend health-related information, has become an important component in the management of complex and chronic diseases such as HIV infection. Clinical measures of health literacy that focus on patients' abilities to follow plans of care ignore the multidimensionality of health literacy. Our thematic analysis of 28 focus groups from a qualitative, multisite, multinational study exploring information practices of people living with HIV (PLWH) demonstrated the importance of location as a dimension of health literacy. Clinical care and conceptual/virtual locations (media/Internet and research studies) were used by PLWH to learn about HIV and how to live successfully with HIV. Nonclinical spaces where PLWH could safely discuss issues such as disclosure and life problems were noted. Expanding clinical perspectives of health literacy to include location, assessing the what and where of learning, and trusted purveyors of knowledge could help providers improve patient engagement in care.
健康素养，包括人们获取、处理和理解健康相关信息的能力，已成为诸如艾滋病毒感染等复杂和慢性疾病管理中的一个重要组成部分。侧重于患者遵循护理计划能力的健康素养临床测量方法忽略了健康素养的多维度性。我们对一项定性、多地点、跨国研究中的28个焦点小组进行的主题分析，该研究探索了艾滋病毒感染者（PLWH）的信息实践，结果表明地点作为健康素养的一个维度具有重要性。艾滋病毒感染者利用临床护理以及概念/虚拟地点（媒体/互联网和研究）来了解艾滋病毒以及如何成功地与艾滋病毒共存。还指出了艾滋病毒感染者可以安全讨论诸如信息披露和生活问题等问题的非临床空间。将健康素养的临床视角扩展到包括地点、评估学习的内容和地点以及可信赖的知识传播者，有助于医疗服务提供者提高患者对护理的参与度。
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