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数字叙事:孩子死后家庭对意义的探寻

Digital Storytelling: Families' Search for Meaning after Child Death.

作者信息

Rolbiecki Abigail J, Washington Karla, Bitsicas Katina

机构信息

a School of Medicine , University of Missouri , Columbia , Missouri , USA.

出版信息

J Soc Work End Life Palliat Care. 2017 Oct-Dec;13(4):239-250. doi: 10.1080/15524256.2017.1387216.

DOI:10.1080/15524256.2017.1387216
PMID:29252152
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7819461/
Abstract

Bereaved families that collectively make meaning of their grief experiences often function better than those that do not, yet most social work bereavement interventions target individuals rather than family units. In this article, authors describe an innovative social work intervention that employs digital storytelling. This is a narrative technique that combines photography, music, and spoken word to help families bereaved by child death make meaning of their loss and envision a future without their deceased child.

摘要

那些共同为悲痛经历赋予意义的丧亲家庭往往比那些没有这样做的家庭表现得更好,但大多数社会工作丧亲干预措施针对的是个体而非家庭单位。在本文中,作者描述了一种采用数字叙事的创新型社会工作干预措施。这是一种叙事技巧,它将摄影、音乐和口语结合起来,帮助因孩子死亡而丧亲的家庭理解他们的损失,并设想一个没有已故孩子的未来。

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Preliminary Results of Caregiver Speaks: A Storytelling Intervention for Bereaved Family Caregivers.《照顾者讲述心声:为丧亲家庭照顾者开展的叙事干预的初步结果》
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Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer.将面对面传统干预转变为针对晚期癌症儿童的基于网络的传统干预。
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本文引用的文献

1
"I thought they should know… that daddy is not completely gone".我想他们应该知道……爸爸并没有完全离开。
Omega (Westport). 2017 Mar;74(4):363-385. doi: 10.1177/0030222816686609. Epub 2017 Jan 9.
2
Storytelling in the Early Bereavement Period to Reduce Emotional Distress Among Surrogates Involved in a Decision to Limit Life Support in the ICU: A Pilot Feasibility Trial.在丧亲之痛早期进行叙事以减轻参与重症监护病房(ICU)限制生命支持决策的替代决策者的情绪困扰:一项初步可行性试验
Crit Care Med. 2017 Jan;45(1):35-46. doi: 10.1097/CCM.0000000000002009.
3
The Power of Digital Storytelling as a Culturally Relevant Health Promotion Tool.数字叙事作为一种与文化相关的健康促进工具的力量。
Health Promot Pract. 2016 Nov;17(6):793-801. doi: 10.1177/1524839916658023. Epub 2016 Jul 8.
4
How digital storytelling is used in mental health: A scoping review.数字故事讲述在心理健康中的应用:范围综述。
Int J Ment Health Nurs. 2016 Jun;25(3):183-93. doi: 10.1111/inm.12206. Epub 2016 Feb 21.
5
Interventions for bereaved parents following a child's death: A systematic review.儿童死亡后对丧亲父母的干预措施:一项系统评价。
Palliat Med. 2015 Jul;29(7):590-604. doi: 10.1177/0269216315576674. Epub 2015 Mar 24.
6
Digital storytelling: an innovative legacy-making intervention for children with cancer.数字叙事:一种针对癌症患儿的创新型传承干预措施。
Pediatr Blood Cancer. 2015 Apr;62(4):658-65. doi: 10.1002/pbc.25337. Epub 2015 Jan 13.
7
Cause of death and the quest for meaning after the loss of a child.孩子去世后的死因和意义探寻。
Death Stud. 2013 Apr;37(4):311-42. doi: 10.1080/07481187.2012.673533.
8
From qualitative work to intervention development in pediatric oncology palliative care research.从儿科肿瘤姑息治疗研究中的定性研究到干预措施开发
J Pediatr Oncol Nurs. 2013 May-Jun;30(3):153-60. doi: 10.1177/1043454213487434. Epub 2013 Apr 30.
9
Promoting positive youth development and highlighting reasons for living in Northwest Alaska through digital storytelling.通过数字叙事促进阿拉斯加西北部青少年的积极发展,并突出生活的意义。
Health Promot Pract. 2013 Jul;14(4):617-23. doi: 10.1177/1524839912462390. Epub 2012 Oct 24.
10
National survey of children's hospitals on legacy-making activities.全国儿童医院传承活动调查。
J Palliat Med. 2012 May;15(5):573-8. doi: 10.1089/jpm.2011.0447.