Boulos Daniel, Morand Eric, Foo Michelle, Trivedi Janki Dhaval, Lai Ruth, Huntersmith Rachel, Zhang Karen, Stark Claire Brigid, Le Suong
Department of General Medicine, Monash Health, Melbourne, Victoria, Australia.
Clinical Informatics, Monash Health, Melbourne, Victoria, Australia.
Intern Med J. 2018 Jan;48(1):84-87. doi: 10.1111/imj.13666.
Research has been slow to leverage digitalised medical records as a data resource. Our study assessed patient acceptability of opt-out consent for secondary use of digital patient data. A questionnaire was distributed to patients in multiple languages and with an interpreter. Of 919 completed surveys, 33% were of non-English speaking background, 15% self-reported cognitive impairment and 3% were refugees. Opt-out consent was accepted in this diverse population; 87% of participants approved, or were indifferent to opt-out consent. Gender, employment and cognition status were not significant determinants of acceptability.
利用数字化医疗记录作为数据资源的研究进展缓慢。我们的研究评估了患者对于数字患者数据二次使用的退出同意书的接受程度。通过多种语言并配备口译员向患者发放了问卷。在919份完成的调查问卷中，33%的患者是非英语背景，15%的患者自我报告有认知障碍，3%是难民。在这个多样化的人群中，退出同意书是被接受的；87%的参与者赞成或对退出同意书持无所谓的态度。性别、就业情况和认知状态并非接受程度的显著决定因素。
