严重发育障碍儿童的生活质量。
The quality of life of children with severe developmental disabilities.
机构信息
Department of Psychology, York University, Toronto, Canada.
出版信息
J Intellect Disabil Res. 2018 Mar;62(3):237-244. doi: 10.1111/jir.12460. Epub 2018 Jan 9.
BACKGROUND
Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SDD group.
METHOD
Parents of 246 children with SDD (aged 4 to 19 years) and 210 TD children (aged 4 to 18 years) responded to an online survey. QoL was measured using a composite variable composed of the child's happiness, achievement of potential and friendship quality.
RESULTS
Children with DD had lower QoL ratings than TD children. In children with DD, higher QoL was related to younger age, higher adaptive skills, lower maladaptive behaviour, lower parent psychological distress and higher satisfaction with the child's education.
CONCLUSIONS
Interventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment.
背景
对患有严重发育障碍（SDD）儿童生活质量（QoL）的研究有限。本研究比较了患有 SDD 的儿童与正常发育（TD）儿童的父母对儿童 QoL 的看法，然后研究了 SDD 组 QoL 的预测因素。
方法
246 名患有 SDD（年龄 4 至 19 岁）的儿童和 210 名 TD 儿童（年龄 4 至 18 岁）的父母通过在线调查回答问题。使用由孩子的幸福感、潜在成就和友谊质量组成的综合变量来衡量生活质量。
结果
患有 DDD 的儿童的生活质量评分低于 TD 儿童。在患有 DDD 的儿童中，更高的生活质量与年龄较小、适应技能较高、适应不良行为较低、父母心理困扰较低以及对孩子教育的满意度较高有关。
结论
促进患有 SDD 的儿童积极结果的干预措施应针对个体和环境的特征。
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