UCL Division of Psychiatry, 6th floor, Maple House, 149 Tottenham Court Road, London, W1T 7NF, United Kingdom; Camden and Islington NHS Foundation Trust, St Pancras Hospital, 4 Saint Pancras Way, London NW1 0PE, United Kingdom.
UCL Research Department of Primary Care & Population Health, UCL Medical School, Royal Free Campus, Rowland Hill St, London NW3 2PF, United Kingdom.
Soc Sci Med. 2018 Feb;198:121-129. doi: 10.1016/j.socscimed.2017.12.035. Epub 2018 Jan 2.
Quantitative studies have found that suicide bereavement is associated with suicide attempt, and is perceived as the most stigmatising of sudden losses. Their findings also suggest that perceived stigma may explain the excess suicidality. There is a need to understand the nature of this stigma and address suicide risk in this group. We aimed to describe and compare the nature of the experiences of stigma reported by people bereaved by suicide, sudden unnatural death, and sudden natural death, and identify any commonalities and unique experiences. We conducted a population-based cross-sectional survey of 659,572 staff and students at 37 British higher educational institutions in 2010, inviting those aged 18-40 who had experienced sudden bereavement of a close contact since the age of 10 to take part in an on-line survey and to volunteer for an interview to discuss their experiences. We used maximum variation sampling from 1398 volunteer interviewees to capture a range of experiences, and conducted individual face-to-face semi-structured interviews to explore perceptions of stigma and support. We continued sampling until no new themes were forthcoming, reaching saturation at n = 27 interviews (11 participants bereaved by suicide). We employed thematic analysis to identify any distinct dimensions of reported stigma, and any commonalities across the three groups. We identified two key themes: specific negative attitudes of others, and social awkwardness. Both themes were common to interviewees bereaved by suicide, sudden unnatural death, and sudden natural death. All interviewees reported the experience of stigmatising social awkwardness, but this may have been experienced more acutely by those bereaved by suicide due to self-stigma. This study provides evidence of a persistent death taboo in relation to sudden deaths. There is potential for anti-stigma interventions to reduce the isolation and social awkwardness perceived by people bereaved suddenly, particularly after suicide loss.
定量研究发现,自杀丧亲与自杀企图有关,被认为是最具污名化的突发性丧失。他们的研究结果还表明,感知到的耻辱感可能解释了自杀率的增加。有必要了解这种耻辱感的性质,并解决这一群体的自杀风险。我们的目的是描述和比较自杀、非自然突发死亡和自然突发死亡丧亲者所报告的耻辱感经历的性质,并确定任何共同和独特的经历。我们于 2010 年在英国 37 所高等教育机构对 659572 名员工和学生进行了一项基于人群的横断面调查,邀请年龄在 18-40 岁之间的人参加在线调查,并自愿接受采访,以讨论他们的经历,这些人在 10 岁后经历过亲密联系人的突然丧亲。我们从 1398 名志愿受访者中采用最大变异抽样,以捕捉各种经历,并进行个人面对面半结构化访谈,以探讨耻辱感和支持的看法。我们继续抽样,直到没有新的主题出现,在 n=27 次访谈(11 名丧亲自杀者)中达到饱和。我们采用主题分析来确定报告的耻辱感的任何独特维度,以及三个群体之间的任何共同点。我们确定了两个关键主题:他人的具体负面态度和社交尴尬。这两个主题都是自杀、非自然突发死亡和自然突发死亡丧亲者的共同主题。所有接受采访的人都报告了受到污名化的社交尴尬的经历,但由于自我耻辱感,自杀丧亲者可能会更强烈地感受到这种经历。这项研究提供了与突然死亡有关的持久死亡禁忌的证据。有潜力通过反耻辱感干预措施来减少突然丧亲者的孤立和社交尴尬,尤其是在自杀损失之后。