镰状细胞病成人患者的生活质量：文献综合综述
Quality of life in adults with sickle cell disease: an integrative review of the literature.
作者信息
Freitas Sandra Luzinete Felix de, Ivo Maria Lucia, Figueiredo Maria Stella, Gerk Maria Auxiliadora de Souza, Nunes Cristina Brandt, Monteiro Fernando de Freitas
机构信息
Universidade Federal de Mato Grosso do Sul, Postgraduate Program in Health and Development in the Central-West Region. Campo Grande, Mato Grosso do Sul, Brazil.
Universidade Federal de São Paulo, Department of Clinical and Experimental Oncology. São Paulo, Brazil.
出版信息
Rev Bras Enferm. 2018 Jan-Feb;71(1):195-205. doi: 10.1590/0034-7167-2016-0409.
OBJECTIVE
To identify the available evidence in the literature on health-related quality of life in adults with sickle cell disease.
METHOD
integrative review of MEDLINE, CUMED, LILACS and SciELO databases, from articles developed in this area, published between 2005 and 2015, in English, Portuguese or Spanish.
RESULTS
22 articles were included, six scales were used to evaluate health-related quality of life scores: three generic and three specific. No specific scale for adults with sickle cell disease has been adapted to Brazilian Portuguese so far. Patients affected by frequent painful crises, with low adherence to treatment, had a compromised quality of life.
CONCLUSION
Selected studies have shown that patients with sickle cell disease have worse scores than the general population. These indicators should be instrumental to the nurse in the proposal of interventions and strategies of assistance and socio-educational, with a view to improving the quality of life of this clientele.
目的
确定文献中有关镰状细胞病成人患者健康相关生活质量的现有证据。
方法
对MEDLINE、CUMED、LILACS和SciELO数据库进行综合回顾，纳入2005年至2015年间发表的、用英语、葡萄牙语或西班牙语撰写的该领域文章。
结果
纳入22篇文章，使用了六种量表来评估健康相关生活质量得分：三种通用量表和三种特定量表。目前尚无专门针对镰状细胞病成人患者的量表被改编为巴西葡萄牙语版本。频繁发生疼痛危机且治疗依从性低的患者生活质量受损。
结论
所选研究表明，镰状细胞病患者的得分低于一般人群。这些指标应有助于护士提出干预措施以及社会教育援助策略，以改善这类患者的生活质量。
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