在产前诊断后做出诊断和决策时的情绪和认知体验：对其伴侣怀有先天性心脏缺陷胎儿的男性所经历情况的定性研究。
Emotional and cognitive experiences during the time of diagnosis and decision-making following a prenatal diagnosis: a qualitative study of males presented with congenital heart defect in the fetus carried by their pregnant partner.
机构信息
Department of Women's and Children's Health, Uppsala University, SE-75237, Uppsala, Sweden.
BMC, Husargatan 3, D11:1, SE-75237, Uppsala, Sweden.
出版信息
BMC Pregnancy Childbirth. 2018 Jan 12;18(1):26. doi: 10.1186/s12884-017-1607-y.
BACKGROUND
Expectant fathers consider the second-trimester obstetric ultrasound examination as an important step towards parenthood, but are ill prepared for a detection of a fetal anomaly. Inductive research is scarce concerning their experiences and needs for support. Consequently, the aim of this study was to explore the emotional and cognitive experiences, during the time of diagnosis and decision-making, among males presented with congenital heart defect in the fetus carried by their pregnant partner.
METHODS
Twelve expectant fathers were consecutively recruited through two tertiary referral centers for fetal cardiology in Sweden, after they had been presented with a prenatal diagnosis of congenital heart defect in the fetus carried by their pregnant partner. The respondents were interviewed via telephone, and the interviews were analyzed using inductive qualitative content analysis.
RESULTS
The respondents experienced an intense emotional shock in connection with detection. However, they set their own needs aside to attend to the supportive needs of their pregnant partner, and stressed the importance of an informed joint decision regarding whether to continue or terminate the pregnancy. When terminating the pregnancy, they experienced a loss of a wanted child, an emotionally intense termination procedure, needs of support neglected by professionals, and worries about the risk of recurrence in future pregnancies. When continuing the pregnancy, they tried to keep a positive attitude about the coming birth, but were simultaneously worried about the postnatal situation.
CONCLUSIONS
The findings illustrate the importance of inclusive care and adequate follow-up routines for both expectant parents following a prenatal diagnosis. This includes the initial emotional shock, the decisional process, and depending on decision reached, the termination or continuation of the pregnancy. Expectant fathers presented with a fetal anomaly need adequate follow-up routines to address worries about risk of recurrence in future pregnancies and worries about the postnatal situation.
背景
准父亲认为中期产科超声检查是迈向为人父母的重要一步，但他们对胎儿异常的检测准备不足。关于他们的经历和对支持的需求的感应研究很少。因此，本研究的目的是探讨在诊断和决策过程中，男性在伴侣妊娠时胎儿存在先天性心脏缺陷时的情绪和认知体验。
方法
在瑞典的两家胎儿心脏病学三级转诊中心，连续招募了 12 名准父亲，他们在伴侣妊娠的胎儿被诊断出先天性心脏缺陷后接受了访谈。受访者通过电话接受访谈，访谈内容采用归纳式定性内容分析进行分析。
结果
受访者在检测时经历了强烈的情绪冲击。然而，他们将自己的需求放在一边，以满足伴侣的支持需求，并强调了共同决定是否继续或终止妊娠的重要性。当终止妊娠时，他们经历了失去想要的孩子、情绪上强烈的终止程序、被专业人员忽视的支持需求以及对未来妊娠中复发风险的担忧。当继续妊娠时，他们试图对即将到来的分娩保持积极的态度，但同时也担心产后情况。
结论
研究结果表明，在产前诊断后，为准父母提供全面的护理和适当的随访常规非常重要。这包括最初的情绪冲击、决策过程，以及根据决策结果，终止或继续妊娠。在伴侣妊娠时发现胎儿异常的准父亲需要适当的随访常规，以解决对未来妊娠中复发风险的担忧以及对产后情况的担忧。
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