King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia.
J Clin Nurs. 2018 Apr;27(7-8):e1508-e1518. doi: 10.1111/jocn.14276. Epub 2018 Mar 13.
To explore the lived experience of the patients post-haematopoietic stem cell transplantation and specifically after engraftment and before discharge.
Patients post-stem cell transplantation experience significant changes in all life aspects. Previous studies carried out by other researchers focused mainly on the postdischarge experience, where patients reported their perceptions that have always been affected by the life post-transplantation and influenced by their surroundings. The lived experience of patients, specifically after engraftment and prior to discharge (the "transition" phase), has not been adequately explored in the literature. Doing so might provide greater insight into the cause of change post-haematopoietic stem cell transplantation.
This study is a phenomenological description of the participants' perception about their lived experience post-haematopoietic stem cell transplantation. The study used Giorgi's method of analysis.
Through purposive sampling, 15 post-haematopoietic stem cell transplantation patients were recruited. Data were collected by individual interviews. Data were then analysed based on Giorgi's method of analysis to reveal the meaning of a phenomenon as experienced through the identification of essential themes.
The analysis process revealed 12 core themes covered by four categories that detailed patients lived experience post-haematopoietic stem cell transplantation. The four categories were general transplant experience, effects of transplantation, factors of stress alleviation and finally life post-transplantation.
This study showed how the haematopoietic stem cell transplantation affected the patients' physical, psychological and spiritual well-being. Transplantation also impacted on the patients' way of thinking and perception of life. Attending to patients' needs during transplantation might help to alleviate the severity of the effects and therefore improve experience.
Comprehensive information about transplantation needs to be provided over different intervals and at different occasions. The role of the haematopoietic stem cell transplantation coordinators is important, and their communication skills and knowledge were found to be significant in patients' preparation and decision-making. As healthcare providers usually attend to only the patients' physical and psychological needs, spirituality was found to play an important role in maintaining morale and making sense of the meaning of life.
探索造血干细胞移植后患者的生活体验，特别是在植入后和出院前。
接受干细胞移植的患者在所有生活方面都经历了重大变化。其他研究人员进行的先前研究主要集中在出院后的体验上，患者在其中报告了他们的看法，这些看法一直受到移植后生活的影响，并受到周围环境的影响。患者的生活体验，特别是在植入后和出院前（“过渡”阶段），在文献中没有得到充分探讨。这样做可能会更深入地了解造血干细胞移植后变化的原因。
这是一项对参与者对造血干细胞移植后生活体验的感知的现象学描述。该研究使用了 Giorgi 的分析方法。
通过目的性抽样，招募了 15 名造血干细胞移植后患者。通过个人访谈收集数据。然后根据 Giorgi 的分析方法对数据进行分析，以揭示通过识别基本主题所体验到的现象的意义。
分析过程揭示了涵盖四个类别的 12 个核心主题，详细描述了造血干细胞移植后患者的生活体验。这四个类别是一般移植体验、移植的影响、减轻压力的因素以及移植后的生活。
这项研究表明造血干细胞移植如何影响患者的身体、心理和精神健康。移植也影响了患者的思维方式和对生活的看法。在移植期间关注患者的需求可能有助于减轻影响的严重程度，从而改善体验。
需要在不同的时间间隔和不同的场合提供有关移植的全面信息。造血干细胞移植协调员的角色很重要，他们的沟通技巧和知识在患者的准备和决策中被发现是非常重要的。由于医疗保健提供者通常只关注患者的身体和心理需求，因此发现灵性在维持士气和赋予生活意义方面发挥了重要作用。
