Blackburn Pippa, Bulsara Caroline
Palliative Care Outcomes Collaboration, Australian Health Services Research Institute, University of Wollongong, Innovation Campus, Wollongong, NSW, Australia.
School of Nursing and Midwifery The University of Notre Dame Australia Fremantle, Western Australia.
Palliat Support Care. 2019 Apr;17(2):172-185. doi: 10.1017/S1478951517001122. Epub 2018 Jan 21.
Although the needs of the bereaved have been identified widely in the literature, how these needs translate into meaningful, appropriate, and client-centered programs needs further exploration. The application of receptivity to support is a critical factor in participation by the bereaved in palliative care bereavement programs. Receptivity is a complex multifactorial phenomenon influenced by internal and external factors that ultimately influences engagement in psychosocial support in bereavement. This study explored factors that influence receptivity to bereavement support from palliative care services in rural, regional, and remote Western Australia.
The study comprised a qualitative descriptive research design using semistructured interviews with 24 bereaved individuals, nine palliative care health professionals, and four Aboriginal Health Professionals. Participants were recruited via palliative care services in country Western Australia. Interviews were transcribed verbatim and thematically analyzed.
Findings revealed that a range of individual, social, and geographical factors influence receptivity to bereavement support and can impact on utilization of bereavement support services.
Receptivity provides a frame of reference to enhance understanding of factors influencing engagement in psychosocial support in bereavement. Receptivity promotes a shift of service provider perspectives of effective supportive care to consumer-centric reasons for engagement.
尽管文献中已广泛明确了丧亲者的需求，但这些需求如何转化为有意义、恰当且以客户为中心的项目仍需进一步探索。接受支持的意愿是丧亲者参与姑息治疗丧亲项目的关键因素。接受意愿是一种复杂的多因素现象，受内部和外部因素影响，最终影响丧亲者参与心理社会支持的程度。本研究探讨了影响西澳大利亚农村、地区和偏远地区丧亲者接受姑息治疗服务中丧亲支持意愿的因素。
本研究采用定性描述性研究设计，对24名丧亲者、9名姑息治疗健康专业人员和4名原住民健康专业人员进行了半结构化访谈。参与者通过西澳大利亚乡村的姑息治疗服务机构招募。访谈内容逐字转录并进行主题分析。
研究结果表明，一系列个人、社会和地理因素会影响丧亲支持的接受意愿，并可能影响丧亲支持服务的利用情况。
接受意愿为增强对影响丧亲者参与心理社会支持因素的理解提供了一个参考框架。接受意愿促使服务提供者从有效支持性护理的角度转向以消费者为中心的参与原因。
