Busa Csilla, Zeller Judit, Csikós Ágnes
Általános Orvostudományi Kar, Alapellátási Intézet, Hospice-Palliatív Tanszék, Pécsi Tudományegyetem Pécs, Rákóczi út 2., 7623.
Alkotmányjogi Tanszék, Állam- és Jogtudományi Kar Pécs.
Orv Hetil. 2018 Jan;159(4):131-140. doi: 10.1556/650.2018.30937.
At the advanced stage of serious illness, end-of-life decisions need to be made. Advance care planning offers patients the right to decide on their own future care when independent decision-making is no longer possible. The most complex and effective advance care plans include patients' preferred or refused medical treatments, care-related wishes, and individual values as well. Advance care planning can improve end-of-life care and contribute to higher satisfaction. It can also reduce distress in relatives and the costs of care. Patients' preferences provide a guidance for professional care. A number of studies have identified the benefits of advance care planning, and it has been included in guidelines. Potential barriers to advance care planning could be as follows: taboo of talking about dying, negative attitudes of patients and relatives, poor knowledge of professional caregivers, lack of necessary circumstances to have the conversation. Advance care planning is almost unknown in Hungary, although it is possible to refuse certain types of treatments. Cooperation of professionals, development of gradual and postgraduate trainings, and improvement of social awareness are also needed so that advance care planning can be adapted in Hungary. Orv Hetil. 2018; 159(4): 131-140.
在重病晚期,需要做出临终决策。预先护理计划赋予患者在无法自主决策时决定自身未来护理的权利。最复杂且有效的预先护理计划包括患者偏好或拒绝的医疗治疗、与护理相关的愿望以及个人价值观。预先护理计划可改善临终护理并提高满意度。它还能减轻亲属的痛苦并降低护理成本。患者的偏好为专业护理提供指导。多项研究已确定预先护理计划的益处,且其已被纳入指南。预先护理计划的潜在障碍可能如下:谈论死亡的禁忌、患者及亲属的消极态度、专业护理人员知识不足、缺乏进行谈话的必要环境。尽管在匈牙利可以拒绝某些类型的治疗,但预先护理计划在该国几乎无人知晓。还需要专业人员的合作、开展渐进式和研究生培训以及提高社会认知度,以便预先护理计划能在匈牙利得到应用。《匈牙利医学周报》。2018年;159(4):131 - 140。