Suppr超能文献

家庭管理对中国慢性病儿童和青少年的过渡准备情况及生活质量的影响。

Family management affecting transition readiness and quality of life of Chinese children and young people with chronic diseases.

作者信息

Sheng Nan, Ma Jiali, Ding Wenwen, Zhang Ying

机构信息

School of Nursing, Shanghai Jiao Tong University, Shanghai, China.

出版信息

J Child Health Care. 2018 Sep;22(3):470-485. doi: 10.1177/1367493517753712. Epub 2018 Jan 23.

Abstract

Transition from pediatric to adult health care is a key milestone for children and young people (CYP) with chronic conditions. Family management (FM) and self-management are two important concepts during the process. This study aimed to explore the relationships between FM, self-management and transition readiness, and quality of life (QoL), and identify the potential CYP or family factors influencing the relationships. Data about FM, self-management and transition readiness, QoL, and various contextual factors were collected from 268 caregiver-child pairs. Structural equation modeling was used to examine the relationships between all variables. Results revealed that the easy aspects of FM mediated the relationships between the challenging aspects of FM, self-management and transition readiness, and QoL of CYP. Self-management and transition readiness mediated the relationship between the easy aspects of FM and QoL. Contextual factors indirectly influenced CYP's transition readiness and QoL through different aspects of FM. The results imply that to ensure the smooth transition from pediatric to adult health care and improve the CYP's QoL, strengthening CYP's independence and self-management competencies, combined with the support of the easy aspects of FM, seem to be useful strategies to increase CYP's readiness for transfer.

摘要

从儿科医疗向成人医疗的过渡,对于患有慢性病的儿童和青少年而言是一个关键的里程碑。家庭管理(FM)和自我管理是这一过程中的两个重要概念。本研究旨在探究家庭管理、自我管理与过渡准备度以及生活质量(QoL)之间的关系,并确定影响这些关系的潜在儿童或家庭因素。从268对照顾者-儿童组合中收集了有关家庭管理、自我管理与过渡准备度、生活质量以及各种背景因素的数据。采用结构方程模型来检验所有变量之间的关系。结果显示,家庭管理的简易方面在家庭管理的挑战性方面、自我管理与过渡准备度以及儿童和青少年的生活质量之间起到了中介作用。自我管理和过渡准备度在家庭管理的简易方面与生活质量之间起到了中介作用。背景因素通过家庭管理的不同方面间接影响儿童和青少年的过渡准备度和生活质量。研究结果表明,为确保从儿科医疗向成人医疗的平稳过渡并提高儿童和青少年的生活质量,增强他们的独立性和自我管理能力,再结合家庭管理简易方面的支持,似乎是提高儿童和青少年过渡准备度的有效策略。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验