Gurková Elena, Soósová Mária Sováriová
Elena Gurková, PhD, MSc, is Associate Professor, Department of Nursing, Faculty of Health Care, University of Prešov in Prešov, Slovak Republic. Mária Sováriová Soósová, PhD, MSc, is Assistant Lecturer, Department of Nursing Care, Faculty of Medicine, Pavol Jozef Šafárik University in Košice, Košice, Slovak Republic.
Gastroenterol Nurs. 2018 Jan/Feb;41(1):29-37. doi: 10.1097/SGA.0000000000000309.
Patients' cognitions about their disease and treatment are important mediators between health and quality of life of patients with chronic diseases and also explain the occurrence of individual differences in individuals' adjustment to chronic disease. The aim of this study was to examine the relationship between illness cognitions and health-related quality of life among adult patients with inflammatory bowel disease. Self-report data on illness cognition and health-related quality of life were collected from 118 people with Crohn disease or ulcerative colitis. Illness cognition of greater helplessness significantly predicted health-related quality of life in patients with inflammatory bowel disease. A relative contribution of acceptance and perceived benefits was not confirmed as a predictor of health-related quality of life. The other variables (type of disease, duration of disease, age, and episode of relapses) did not have statistical significance, except for gender. Results demonstrate that experiencing helplessness in relation to the disease, its treatment, and consequences can be generalized to patients in all areas of daily life, leading to deterioration in their overall psychological and physical functioning. These results can provide useful indicators of potential patient's adherence in treatment and self-management of inflammatory bowel disease.
患者对自身疾病及治疗的认知是慢性病患者健康与生活质量之间的重要调节因素，同时也解释了个体在适应慢性病过程中出现个体差异的原因。本研究旨在探讨成年炎症性肠病患者的疾病认知与健康相关生活质量之间的关系。我们从118例克罗恩病或溃疡性结肠炎患者中收集了关于疾病认知和健康相关生活质量的自我报告数据。炎症性肠病患者中，更大程度的无助感疾病认知显著预测了健康相关生活质量。接受程度和感知益处的相对贡献未被确认为健康相关生活质量的预测因素。除性别外，其他变量（疾病类型、病程、年龄和复发次数）均无统计学意义。结果表明，在疾病、其治疗及后果方面体验到无助感可扩展至患者日常生活的所有领域，导致其整体心理和生理功能恶化。这些结果可为炎症性肠病患者治疗依从性和自我管理的潜在指标提供有用信息。
