Eghdam Aboozar, Hamidi Ulrika, Bartfai Aniko, Koch Sabine
Health Informatics Centre (HIC), Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden.
Division of Rehabilitation Medicine, Department of Clinical Sciences Danderyd Hospital, Karolinska Institutet, Stockholm, Sweden.
PLoS One. 2018 Jan 29;13(1):e0191878. doi: 10.1371/journal.pone.0191878. eCollection 2018.
Social media has the potential to increase social participation and support for the well-being of individuals with chronic medical conditions. To date, Facebook is the most popular social medium for different types of communication. However, there is a lack of knowledge about the potential use of Facebook as a means of communication for persons with potential Mild Acquired Cognitive Impairment (MACI), a non-progressive mild cognitive impairment after an acquired brain injury. The aim of this study was to explore how persons with potential MACI, specifically persons with perceived brain fatigue after brain injury, communicate through Facebook, to classify the content of the communication and to visualize the frequency and types of interactions.
A social network analysis of the interactions between members' and a qualitative content analysis of a whole year's communication of a public Facebook group for Swedish speaking persons (1310 members) with perceived brain fatigue after an illness or injury to the brain were performed.
The results showed how members use social media technology and Facebook as a means for communication and support for their condition. Individual group members showed very different patterns of communication and interactions. However, for the group as a whole, the most frequent topics in their communication were related to informational support and banter in posts, and socialization in comments. The findings also showed that the majority of members only communicated with few other members and had few direct communications. The most used communication feature of Facebook was likes in form of "thumbs-up".
This study indicated that social media and in this case Facebook is used for communication and social support by persons with potential MACI, and revealed that their communication behavior is similar to the healthy population. Further studies relating specific cognitive problems of the participants to the use of social media would provide more reliable results for this specific group.
社交媒体有潜力增加社会参与度,并为患有慢性疾病的个体的福祉提供支持。迄今为止,脸书是用于各类交流的最受欢迎的社交媒体。然而,对于脸书作为一种交流方式在潜在轻度获得性认知障碍(MACI)患者中的潜在用途,我们了解不足。MACI是一种后天脑损伤后出现的非进行性轻度认知障碍。本研究的目的是探讨潜在MACI患者,特别是那些脑损伤后有脑疲劳感的患者,如何通过脸书进行交流,对交流内容进行分类,并直观呈现互动的频率和类型。
对一个瑞典语公共脸书群组(1310名成员)的成员间互动进行了社交网络分析,并对该群组中因疾病或脑损伤而有脑疲劳感的成员一整年的交流内容进行了定性内容分析。
结果显示了成员如何利用社交媒体技术和脸书作为交流手段以及对自身状况的支持。个体群组成员表现出非常不同的交流和互动模式。然而,就整个群组而言,他们交流中最常见的话题与帖子中的信息支持和打趣,以及评论中的社交活动有关。研究结果还表明,大多数成员只与少数其他成员交流,直接交流很少。脸书最常用的交流功能是“点赞”形式的“竖起大拇指”。
本研究表明,社交媒体在本案例中即脸书,被潜在MACI患者用于交流和社会支持,并揭示出他们的交流行为与健康人群相似。将参与者的特定认知问题与社交媒体的使用相关联的进一步研究,将为这一特定群体提供更可靠的结果。