Whitfield Kyle
Faculty of Extension, University of Alberta, Edmonton, Canada.
Ann Palliat Med. 2018 Jan;7(Suppl 1):AB001. doi: 10.21037/apm.2018.s001.
Our study explored the value of a community engaged model for good hospice care in three rural communities in Alberta, Canada. When communities are highly engaged in planning and implementing hospice care in their communities, our study discovered that they have key characteristics: that volunteerism needs to be balanced to prevent burnout; that the local knowledge of community members is used in a number of ways to plan and provide good hospice care; that a variety of resources, infrastructure, policies and expertise are used by the community to nurture community-focused palliative care initiatives. The value to the community or social capital, that accrues from these initiatives is not easily appreciated by the community members, and community-based initiatives benefit when this value is identified for them. In all three communities a focus group was conducted separately with the Hospice Society board and with family members and volunteers connected with the Hospice Society. Participants attending this oral presentation will learn how community palliative care is perceived by non-professional community leaders, as well as strategies that may help address barriers that are encountered when communities become engaged in addressing their own hospice and end of life care needs.
我们的研究探讨了社区参与模式在加拿大艾伯塔省三个农村社区提供优质临终关怀服务方面的价值。当社区高度参与其所在社区的临终关怀规划和实施时，我们的研究发现它们具有关键特征：志愿服务需要保持平衡以防止倦怠；社区成员的本地知识通过多种方式用于规划和提供优质临终关怀服务；社区利用各种资源、基础设施、政策和专业知识来培育以社区为中心的姑息治疗倡议。这些倡议所产生的对社区或社会资本的价值，社区成员并不容易理解，而当为社区确定这种价值时，基于社区的倡议会从中受益。在所有三个社区，分别与临终关怀协会董事会以及与临终关怀协会相关的家庭成员和志愿者进行了焦点小组讨论。参加本次口头报告的与会者将了解非专业社区领袖如何看待社区姑息治疗，以及可能有助于解决社区在参与满足自身临终关怀和生命末期护理需求时遇到的障碍的策略。
