1 Queen's University, Kingston, Ontario, Canada.
2 University of Alberta, Edmonton, Alberta, Canada.
Qual Health Res. 2018 Apr;28(5):778-788. doi: 10.1177/1049732317753584. Epub 2018 Feb 7.
We aimed to understand participants' experiences with a self-guided fatigue management resource, Multiple Sclerosis: An Interactive Fatigue Management Resource ( MS INFoRm), and the extent to which they found its contents relevant and useful to their daily lives. We recruited 35 persons with MS experiencing mild to moderate fatigue, provided them with MS INFoRm, and then conducted semistructured interviews 3 weeks and 3 months after they received the resource. Interpretive description guided the analysis process. Findings indicate that participants' experience of using MS INFoRm could be understood as a process of change, influenced by their initial reactions to the resource. They reported experiencing a shift in knowledge, expectations, and behaviors with respect to fatigue self-management. These shifts led to multiple positive outcomes, including increased levels of self-confidence and improved quality of life. These findings suggest that MS INFoRm may have a place in the continuum of fatigue management interventions for people with MS.
我们旨在了解参与者使用自我指导的疲劳管理资源（多发性硬化症：互动疲劳管理资源，即 MS INFoRm）的体验，以及他们认为其内容与日常生活的相关性和实用性。我们招募了 35 名患有轻度至中度疲劳的多发性硬化症患者，为他们提供了 MS INFoRm，并在他们收到资源后的 3 周和 3 个月后进行了半结构化访谈。解释性描述指导了分析过程。研究结果表明，参与者使用 MS INFoRm 的体验可以理解为一个变化的过程，受到他们对资源的最初反应的影响。他们报告说，在疲劳自我管理方面，他们在知识、期望和行为方面都发生了转变。这些转变带来了多个积极的结果，包括自信心的提高和生活质量的改善。这些发现表明，MS INFoRm 在多发性硬化症患者的疲劳管理干预连续体中可能占有一席之地。
