5 岁脑瘫儿童的生活质量和习惯性体力活动：一项横断面研究。
Quality of life and habitual physical activity in children with cerebral palsy aged 5 years: A cross-sectional study.
机构信息
Queensland Cerebral Palsy and Rehabilitation Research Centre, UQ Child Health Research Centre, The University of Queensland, Brisbane, Australia; Department of Physical Therapy, Faculty of Allied Health Sciences, Thammasat University, Pathumthani, Thailand.
Queensland Cerebral Palsy and Rehabilitation Research Centre, UQ Child Health Research Centre, The University of Queensland, Brisbane, Australia; Dietetics and Food Services, Lady Cilento Children's Hospital, Children's Health Queensland, South Brisbane, Australia.
出版信息
Res Dev Disabil. 2018 Mar;74:139-145. doi: 10.1016/j.ridd.2018.01.008. Epub 2018 Feb 3.
OBJECTIVE
To compare quality of life (QOL) according to ambulatory status and to investigate association with habitual physical activity (HPA) in children with cerebral palsy (CP) aged 5 years.
METHODS
Fifty-eight participants were classified using Gross Motor Function Classification System (GMFCS) as level I = 33, II = 8, III = 6, IV = 3 and V = 8 and assessed for motor function using 66-item Gross Motor Function Measure (GMFM-66). Participants wore an ActiGraph triaxial accelerometer for 3 days to measure HPA. Parents completed the parent proxy Cerebral Palsy Quality of Life questionnaire for Children (CP QOL-Child). Linear regression analyses were performed.
RESULTS
Ambulant children with CP (GMFCS I-III) had better parent-reported QOL than non-ambulant children (GMFCS IV-V) in domains of feelings about functioning (mean difference (MD) = 20.0; 95% confidence interval (CI) = 11.7, 28.2), participation and physical health (MD = 14.5; 95%CI = 4.7, 24.4), and emotional well-being and self-esteem (MD = 12.5; 95%CI = 4.8, 20.1). HPA was not associated with QOL domains after controlling for motor function. GMFM scores accounted for 39% of variation for feelings about functioning domain (MD = 0.4; 95%CI = 0.2, 0.6).
CONCLUSIONS
In children with CP aged 5 years, HPA was not associated with parent-reported QOL. Gross motor function contributed to QOL domains of feelings about functioning.
目的
比较不同活动状态下脑瘫儿童的生活质量（QOL），并探讨其与习惯性体力活动（HPA）的关系。
方法
58 名参与者根据粗大运动功能分类系统（GMFCS）分为 I 级（33 人）、II 级（8 人）、III 级（6 人）、IV 级（3 人）和 V 级（8 人），并使用 66 项粗大运动功能测量量表（GMFM-66）评估运动功能。参与者佩戴三轴加速度计 ActiGraph 进行 3 天的 HPA 测量。家长使用脑瘫儿童生活质量问卷（CP QOL-Child）完成代理报告。进行线性回归分析。
结果
活动能力正常的脑瘫儿童（GMFCS I-III 级）在功能感受（MD=20.0；95%置信区间（CI）=11.7，28.2）、参与度和身体健康（MD=14.5；95%CI=4.7，24.4）以及情绪健康和自尊（MD=12.5；95%CI=4.8，20.1）等领域的父母报告的 QOL 优于活动能力受限的脑瘫儿童（GMFCS IV-V 级）。控制运动功能后，HPA 与 QOL 领域无关。GMFM 评分解释了功能感受领域变化的 39%（MD=0.4；95%CI=0.2，0.6）。
结论
在 5 岁脑瘫儿童中，HPA 与父母报告的 QOL 无关。粗大运动功能与功能感受领域的 QOL 相关。
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