Department of Neurology, "Sveti Duh" University Hospital, School of Medicine Josip Juraj Strossmayer, University of Osijek, Sveti Duh 64, Zagreb, Croatia.
Department of Neurology, "Sveti Duh" University Hospital, School of Medicine Josip Juraj Strossmayer, University of Osijek, Sveti Duh 64, Zagreb, Croatia.
Epilepsy Behav. 2018 Mar;80:122-128. doi: 10.1016/j.yebeh.2018.01.002. Epub 2018 Feb 2.
Pregnancy-related issues in epilepsy (PRIE) are essential for management of epilepsy in women. We conducted a study among women with epilepsy (WWE) aged 15-45years about their knowledge, sources, and needs for information regarding PRIE, which included their current antiepileptic drugs (AEDs) usage. Women with epilepsy, visitors of Croatian Association for Epilepsy webpage, were offered an online questionnaire, and 200 responses were analyzed. The mean number of correct answers about PRIE was 3.5 out of 5. Main predictors of knowledge on PRIE were a prior consultation with a neurologist and higher usage of books/brochures. A prior neurologist consultation on PRIE was stated by 45% of subjects. As the preferred future mode of being informed on PRIE, majority of women (61%) chooses their neurologist, 22% written materials distributed by a neurologist, and only 13% Internet. Levetiracetam was the most commonly used AED (34.5%). Valproate was used by 26%, and of those 59% stated no previous consultation on PRIE with their neurologist. In summary, we believe our study shows that knowledge of PRIE among WWE in their childbearing age is unsatisfactory, as are the neurologist consultation rates about PRIE. Our results demonstrate that, despite modern technologies, educational activities should be based on neurologist consultations and providing the patients with appropriate written materials. This is especially true for the relatively large proportion of women still taking valproate.
妊娠与癫痫相关问题(PRIE)是女性癫痫管理的重要内容。我们对 15-45 岁的癫痫女性(WWE)进行了一项研究,了解她们对 PRIE 的知识、信息来源和需求,包括她们目前使用的抗癫痫药物(AEDs)。我们向癫痫女性协会网页的访客提供了在线问卷,分析了 200 份回复。关于 PRIE 的正确答案平均得分为 5 分中的 3.5 分。PRIE 知识的主要预测因素是之前与神经科医生的咨询和对书籍/手册的更高使用。45%的受访者表示曾就 PRIE 与神经科医生进行过咨询。作为未来获取 PRIE 信息的首选方式,大多数女性(61%)选择她们的神经科医生,22%选择由神经科医生分发的书面材料,只有 13%选择互联网。左乙拉西坦是最常用的 AED(34.5%)。丙戊酸的使用率为 26%,其中 59%的人表示没有就 PRIE 与他们的神经科医生进行过咨询。总之,我们认为我们的研究表明,处于生育年龄的 WWE 对 PRIE 的认识不足,神经科医生对 PRIE 的咨询率也不足。我们的研究结果表明,尽管有现代技术,但教育活动应基于神经科医生的咨询,并为患者提供适当的书面材料。对于仍在使用丙戊酸的女性比例相对较大的患者来说尤其如此。