School of Nursing, Vita-Salute San Raffaele University, 20132 Milan, Italy.
Rome American Hospital, 00155 Rome, Italy.
Appl Nurs Res. 2018 Feb;39:46-52. doi: 10.1016/j.apnr.2017.10.005. Epub 2017 Oct 16.
To explore the experiences of self-care of patients with urostomy and to identify the influencing factors of self-care.
The creation of a urostomy results in the loss of an important bodily function and an alteration of the body image and causes physical, psychological, and social changes in the lifestyle through the adjustment and management of the new condition. In literature, there are few studies that analyze the lifestyle of people with urostomy.
In this qualitative design, an interpretative phenomenological analysis was used. Eleven people living with urostomies took part in semi-structured interviews consisting of open-ended questions about their self-care experience. Data were collected between March and September 2016.
Six themes and twelve subthemes emerged from the data analysis. The themes were: Surgery impact, body image, daily and social-life activities, stoma and sexuality, managing stoma education, family and friends' support.
This study highlights the impact a stoma has on people's lives. This impact should be absorbed with personalized education before the surgery with the eventual need of a continuous and planned educational course respecting the patients' needs. This study shows that a continuous and planned educational plan is crucial for patients living with urostomies. Therefore, nurses should provide patients an adequate support and a personalized education program to cope with ostomy.
探讨尿路造口患者自我护理的经验，并确定自我护理的影响因素。
尿路造口术的创建导致重要身体功能的丧失以及身体形象的改变，并通过对新状况的调整和管理，导致生活方式的身体、心理和社会变化。在文献中，很少有研究分析尿路造口患者的生活方式。
在这一定性设计中，采用了解释性现象学分析。11 名患有尿路造口术的患者参加了半结构式访谈，内容涉及他们自我护理经验的开放性问题。数据收集于 2016 年 3 月至 9 月之间。
从数据分析中出现了六个主题和十二个子主题。这些主题包括：手术影响、身体形象、日常和社会生活活动、造口和性、管理造口教育、家庭和朋友的支持。
这项研究强调了造口对人们生活的影响。这种影响应该在手术前通过个性化教育来吸收，最终需要一个尊重患者需求的持续和有计划的教育课程。本研究表明，对于患有尿路造口术的患者，持续和有计划的教育计划至关重要。因此，护士应向患者提供足够的支持和个性化的教育计划，以应对造口问题。
