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评估一个面向食物过敏儿童的家长和照护者的在线教育项目。

Evaluation of an Online Educational Program for Parents and Caregivers of Children With Food Allergies.

机构信息

Mejo Digital Health, Barcelona, Spain.

Department of Allergy, Hospital La Paz Institute for Health Research (IdiPAZ), Madrid, Spain.

出版信息

J Investig Allergol Clin Immunol. 2018;28(1):37-41. doi: 10.18176/jiaci.0214.

Abstract

BACKGROUND AND OBJECTIVE

The increasing prevalence of food allergy affects both patients and their families. Objective: The aim of this study was to evaluate the impact of an online educational program designed for parents and caregivers of children with food allergies. The program was developed by a multidisciplinary group comprising health care professionals, researchers, and expert patients under the participatory medicine model.

MATERIAL AND METHODS

Participants took a 2-week online educational program covering major topics in food allergy management. General knowledge about the disease, symptoms, treatment, and topics relevant to families' daily lives were evaluated. The contents included educational videos, online forums, and live video chats. A pretest/posttest questionnaire survey was used to evaluate the impact of the program.

RESULTS

A total of 207 participants enrolled in the educational program, which was completed by 130 (62.8%). Knowledge acquisition improved significantly following participation in the program in 15 out of 30 items (50%), reaching P<.001 for 8 items (26.7%). Of the 207 participants who started the program, 139 (67.1%) visited online forums, and 27.5% attended video chats. Average overall satisfaction with the educational program was 8.78 (on a scale of 0 to 10).

CONCLUSIONS

The results obtained show that parents improved their knowledge in all areas of food allergy. The high level of satisfaction among participants suggests that digital learning tools are effective and motivational, enabling patients to acquire appropriate knowledge and thus increasing their quality of life.

摘要

背景和目的

食物过敏的患病率不断上升,不仅影响患者,也影响其家属。目的:本研究旨在评估为食物过敏儿童的家长和照顾者设计的在线教育计划的影响。该计划由一个多学科小组开发,包括医疗保健专业人员、研究人员和专家患者,遵循参与式医学模式。

材料和方法

参与者参加了为期两周的在线教育计划,涵盖食物过敏管理的主要主题。评估了关于疾病、症状、治疗以及与家庭日常生活相关的主题的一般知识。内容包括教育视频、在线论坛和实时视频聊天。使用预测试/后测试问卷调查来评估该计划的影响。

结果

共有 207 名参与者参加了该教育计划,其中 130 名(62.8%)完成了该计划。在 30 个项目中的 15 个(50%)中,参与者在参与该计划后知识获取显著提高,达到 8 个项目(26.7%)的 P<.001。在开始该计划的 207 名参与者中,有 139 名(67.1%)访问了在线论坛,27.5%参加了视频聊天。对教育计划的总体满意度平均为 8.78(满分 10 分)。

结论

研究结果表明,家长在食物过敏的所有领域都提高了他们的知识。参与者的高满意度表明,数字学习工具是有效的和激励性的,可以使患者获得适当的知识,从而提高他们的生活质量。

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