Pinheiro Isabel, Jaff Dilshad
a College of Arts and Sciences , University of North Carolina , Chapel Hill , NC , USA.
b Gillings School of Global Public Health , University of North Carolina , Chapel Hill , NC , USA.
Med Confl Surviv. 2018 Feb 27:1-20. doi: 10.1080/13623699.2018.1437966.
Refugees are often afflicted with health conditions that require long-term, specialized and continuous care services that are costly and difficult to secure in host countries and camp settings. This study interviewed 21 Syrian refugees in Jordan with life-limiting conditions such as cancer, diabetes, chronic disability and renal failure, and 4 caregivers caring for refugee children with similar conditions. This study found that patients in refugee camps and communities would benefit from receiving palliative care services that are often either unavailable or inaccessible. Training humanitarian teams and primary care providers to implement pain management, offer psychosocial support services and address emotional, spiritual, and psychological conditions could ameliorate many of the problems faced by this vulnerable group.
难民常常患有需要长期、专业且持续护理服务的健康问题，而这些服务在东道国和难民营环境中成本高昂且难以获得。本研究采访了约旦境内21名患有癌症、糖尿病、慢性残疾和肾衰竭等危及生命疾病的叙利亚难民，以及4名照顾患有类似疾病的难民儿童的照料者。研究发现，难民营和社区中的患者将受益于姑息治疗服务，而这类服务往往要么无法获得，要么难以获取。培训人道主义团队和初级保健提供者以实施疼痛管理、提供心理社会支持服务并处理情感、精神和心理状况，可缓解这一弱势群体面临的许多问题。
