NIHR Horizon Scanning Research & Intelligence Centre (HSRIC),Institute of Applied Health Research,University of
NIHR Horizon Scanning Research & Intelligence Centre (HSRIC),Institute of Applied Health Research.
Int J Technol Assess Health Care. 2018 Jan;34(1):10-17. doi: 10.1017/S0266462317004421.
The aim of this study is to report on the experiences, benefits, and challenges of patient and public involvement and engagement (PPIE) from a publicly funded early awareness and alert (EAA) system in the United Kingdom.
Using email, telephone, a Web site portal, Twitter and focus groups, patients and the public were involved and engaged in the recognized stages of an EAA system: identification, filtration, prioritization, early assessment, and dissemination.
Approaches for PPIE were successfully integrated into all aspects of the National Institute for Health Research Horizon Scanning Research and Intelligence Centre's EAA system. Input into identification activities was not as beneficial as involvement in prioritization and early assessment. Patients gave useful insight into the Centre's Web site and engaging patients using Twitter has enabled the Centre to disseminate outputs to a wider audience.
EAA systems should consider involving and engaging with patients and the public in identification, prioritization, and assessment of emerging health technologies where practicable. Further research is required to examine the value and impact of PPIE in EAA activities and in the early development of health technologies.
本研究旨在报告英国一个由公共资金支持的早期预警系统中患者和公众参与（PPIE）的经验、益处和挑战。
通过电子邮件、电话、网站门户、Twitter 和焦点小组，患者和公众参与并参与了早期预警系统的各个公认阶段：识别、筛选、优先排序、早期评估和传播。
PPIE 的方法成功地融入了国家卫生研究院视野扫描研究和情报中心早期预警系统的各个方面。在识别活动中的投入不如在优先排序和早期评估中的投入有益。患者为中心的网站提供了有用的见解，并通过使用 Twitter 与患者互动，使中心能够将产出传播给更广泛的受众。
早期预警系统应考虑在可行的情况下让患者和公众参与新兴健康技术的识别、优先排序和评估。需要进一步研究以检验 PPIE 在早期预警活动和健康技术早期开发中的价值和影响。
