Eye Center, The Second Affiliated Hospital of Zhejiang University School of Medicine, Hangzhou, China.
Pediatr Blood Cancer. 2018 Jul;65(7):e27024. doi: 10.1002/pbc.27024. Epub 2018 Mar 12.
To study the quality of life of Chinese pediatric patients with retinoblastoma (RB) after enucleation and the influencing factors.
A questionnaire survey was performed on 71 cases of pediatric patients with RB after enucleation and 80 cases of healthy children, using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL™ 4.0).
The social dimension scores, school dimension scores, and total scores for the PedsQL™ 4.0 among the pediatric patients with RB were statistically significantly lower than those of healthy children. The influencing factors were unilateral/bilateral affected eyes, diagnosis age, and ocular prosthesis satisfaction.
Early discovery, timely treatment, increased eye salvage rate, and cosmetic effects of ocular prosthesis were key factors for increasing the quality of life of pediatric patients with RB. Attention should be paid to the health, social, and school development of pediatric patients with RB.
研究儿童视网膜母细胞瘤（RB）患者眼球摘除术后的生活质量及其影响因素。
采用儿童生活质量量表 4.0 通用核心量表（PedsQLTM 4.0）对 71 例 RB 患儿眼球摘除术后患儿和 80 例健康儿童进行问卷调查。
RB 患儿的社会维度评分、学校维度评分和 PedsQLTM 4.0 总分均明显低于健康儿童。影响因素为单眼/双眼受累、诊断年龄和眼假体满意度。
早期发现、及时治疗、提高保眼率和眼假体的美容效果是提高 RB 患儿生活质量的关键因素。应关注 RB 患儿的健康、社会和学校发展。
