Ballantyne Marilyn, Bernardo Stephanie, Sozer Aubrey, Orava Taryn, C McPherson Amy, Church Paige, Fehlings Darcy
a Holland Bloorview Kids Rehabilitation Hospital , Toronto , ON , Canada.
b University of Toronto , Toronto , ON , Canada.
Dev Neurorehabil. 2019 Feb;22(2):87-97. doi: 10.1080/17518423.2018.1434698. Epub 2018 Mar 12.
Parents' experiences transitioning their children from neonatal to developmental/rehabilitation services (DRS) are unknown.
A qualitative descriptive approach was used, including interviews with 18 parents (13 mothers and 5 fathers) of children born preterm and diagnosed with cerebral palsy (CP), located in a large urban center in Canada. Interview data underwent thematic analysis.
Parents' experiences with transition to DRS were a whole new world with three key themes: Wanting to know what to expect, feeling supported in their transition, and getting there emotionally and physically. Transition broke an emotional bond with neonatal services while parents were simultaneously entering DRS, experiencing their child's CP diagnosis, and reliving prior emotional trauma.
The findings reveal a cumulative emotional burden for parents in the first 3 years of life; a known critical period for parenting and early childhood development. Early transition interventions should consider including enhanced supports and services for parents.
父母将孩子从新生儿服务过渡到发育/康复服务（DRS）的经历尚不清楚。
采用定性描述性方法，对加拿大一个大型城市中心18名早产并被诊断为脑瘫（CP）儿童的父母（13名母亲和5名父亲）进行访谈。访谈数据进行了主题分析。
父母向DRS过渡的经历是一个全新的世界，有三个关键主题：想知道会发生什么，在过渡过程中感到得到支持，以及在情感和身体上做好准备。过渡打破了与新生儿服务的情感纽带，与此同时，父母们开始接受DRS服务，经历孩子的脑瘫诊断，并重温之前的情感创伤。
研究结果揭示了父母在孩子生命的头3年中累积的情感负担；这是育儿和幼儿发展的一个关键时期。早期过渡干预应考虑为父母提供更多的支持和服务。
