患者对明智清单（斯德哥尔摩药品与治疗委员会的药品处方集）的了解与态度。

Patients' knowledge and attitudes to the Wise List - a drug formulary from the Stockholm Drug and Therapeutic committee.

作者信息

Bastholm-Rahmner Pia, Gustafsson Lars L, Aggefors Kristina, Ateva Kristina, Elfving Susanne, Eriksen Jaran, Jirlow Malena, Juhasz-Haverinen Maria, Malmström Rickard E, Nikpour-Ardaly Mahan, Röjvall Magnus, Vallin Martina, Andersén-Karlsson Eva, Ovesjö Marie-Louise

机构信息

Medical Management Centre, LIME, Karolinska Institutet, Tomtebodavägen 18 A, 171 77, Stockholm, Sweden.

Division of Clinical Pharmacology, Department of Laboratory Medicine, Karolinska Institutet at Karolinska University Hospital Huddinge, 141 86, Stockholm, Sweden.

出版信息

BMC Health Serv Res. 2018 Mar 12;18(1):176. doi: 10.1186/s12913-018-2968-2.

DOI:10.1186/s12913-018-2968-2

PMID:29530028

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5848508/

Abstract

BACKGROUND

Involving patients in decisions about their pharmacotherapy is crucial for a satisfactory treatment outcome. Information and opinions about medicines are available from a variety of sources. The Wise List is the drug formulary of recommended essential medicines for the Stockholm healthcare region and is issued by the Drug and Therapeutics Committee (DTC). To inform the public about treatment for common diseases and the concept of recommended medicines, a patient edition of the Wise List was developed. The aim of this study was to explore patients' knowledge, needs and attitudes to the Wise List, DTC and information about medicines in general.

METHODS

To examine patient knowledge about recommended medicines a survey (n = 312) was carried out at four large primary healthcare centres in Stockholm, Sweden. To further elucidate the patients' needs of the information on recommended medicines and medicines in general, three focus group discussions (FGDs) were performed.

RESULTS

Of the respondents 57% did not recognise the Wise List, 26% recognised but did not use it and 17% used it. A total of 63% reported that they search for information about medicines. The most common information source was "asking their doctor" (36%) followed by searching the internet (31%). The FGDs revealed that the patients were not interested in medicines in general, only in the medicines they use themselves. They did not understand the aim of the Wise List or how they could benefit from information about recommended medicines. The patients expressed a wish to access all information they need about their own care as well as public healthcare information at one location.

CONCLUSION

The intended aim of the DTC with providing information to the public was not achieved as the patients have difficulties to understand the information and how they should use it. The patients were not interested in medicines in general, they wanted information tailored to their specific needs. The findings highlight the importance of creating tools for patients in collaboration with them and evaluate the concept continuously.

摘要

背景

让患者参与有关其药物治疗的决策对于获得满意的治疗效果至关重要。关于药物的信息和观点可从多种来源获取。《明智清单》是斯德哥尔摩医疗保健地区推荐基本药物的药品处方集，由药物与治疗委员会（DTC）发布。为了向公众宣传常见疾病的治疗方法以及推荐药物的概念，开发了《明智清单》的患者版。本研究的目的是探讨患者对《明智清单》、DTC以及一般药物信息的了解、需求和态度。

方法

为了调查患者对推荐药物的了解情况，在瑞典斯德哥尔摩的四个大型初级医疗保健中心进行了一项调查（n = 312）。为了进一步阐明患者对推荐药物和一般药物信息的需求，进行了三次焦点小组讨论（FGD）。

结果

在受访者中，57%不认识《明智清单》，26%认识但未使用，17%使用过。共有63%的人报告说他们会搜索药物信息。最常见的信息来源是“询问医生”（36%），其次是在互联网上搜索（31%）。焦点小组讨论表明，患者一般对药物不感兴趣，只对自己使用的药物感兴趣。他们不理解《明智清单》的目的，也不明白如何从推荐药物的信息中受益。患者表示希望在一个地方就能获取他们所需的关于自身护理的所有信息以及公共医疗保健信息。