Wong Deanne, Morgan-Lynch Sebastian
The Royal New Zealand College of General Practitioners, Wellington, New Zealand.
Office of the Privacy Commissioner, Wellington, New Zealand.
J Prim Health Care. 2017 Dec;9(4):240-243. doi: 10.1071/HC17037.
Patient portals enable people to access their health information electronically, but concerns about confidentiality and privacy breaches, particularly for young people, may be impeding portal adoption in New Zealand. This paper considers the legal and ethical framework relating to health information privacy and informed consent in New Zealand, and proposes an approach to implementing patient portals for young people. Shared portal access (where both a young person and their parent or guardian have access to the young person's portal) may be appropriate for young children whose parents or guardians are responsible for their health care. However, as children mature and their capacity to make health care decisions increases, general practitioners will need to consider shifting to independent portal access by competent young people. The circumstances of each young person, including their best interests and rights, cultural needs and their views on information disclosure should be taken into account.
患者门户网站使人们能够以电子方式访问自己的健康信息，但对保密性和隐私泄露的担忧，尤其是对年轻人来说，可能正在阻碍新西兰对门户网站的采用。本文探讨了新西兰与健康信息隐私和知情同意相关的法律和道德框架，并提出了一种为年轻人实施患者门户网站的方法。共享门户网站访问（即年轻人及其父母或监护人都可以访问年轻人的门户网站）可能适用于其父母或监护人负责其医疗保健的幼儿。然而，随着儿童的成长以及他们做出医疗保健决策的能力增强，全科医生将需要考虑转向由有行为能力的年轻人独立访问门户网站。应考虑每个年轻人的具体情况，包括他们的最大利益和权利、文化需求以及他们对信息披露的看法。
