Kim Eun Ji, Yuan Yiyang, Liebschutz Jane, Cabral Howard, Kazis Lewis
Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Manhasset, NY, United States.
University of Massachusetts Medical School, Worcester, MA, United States.
JMIR Rehabil Assist Technol. 2018 Mar 16;5(1):e3. doi: 10.2196/rehab.8783.
Disabilities affect more than 1 in 5 US adults, and those with disabilities face multiple barriers in accessing health care. A digital gap, defined as the disparity caused by differences in the ability to use advanced technologies, is assumed to be prevalent among individuals with disabilities.
This study examined the associations between disability and use of information technology (IT) in obtaining health information and between trust factors and IT use. We hypothesized that compared to US adults without disabilities, those with disabilities are less likely to refer to the internet for health information, more likely to refer to a health care provider to obtain health information, and less likely to use IT to exchange medical information with a provider. Additionally, we hypothesized that trust factors, such as trust toward health information source and willingness to exchange health information, are associated with IT use.
The primary database was the 2013 Health Information National Trends Survey 4 Cycle 3 (N=3185). Disability status, the primary study covariate, was based on 6 questions that encompassed a wide spectrum of conditions, including impairments in mobility, cognition, independent living, vision, hearing, and self-care. Study covariates included sociodemographic factors, respondents' trust toward the internet and provider as information sources, and willingness to exchange medical information via IT with providers. Study outcomes were the use of the internet as the primary health information source, use of health care providers as the primary health information source, and use of IT to exchange medical information with providers. We conducted multivariate logistic regressions to examine the association between disability and study outcomes controlling for study covariates. Multiple imputations with fully conditional specification were used to impute missing values.
We found presence of any disability was associated with decreased odds (adjusted odds ratio [AOR] 0.65, 95% CI 0.43-0.98) of obtaining health information from the internet, in particular for those with vision disability (AOR 0.27, 95% CI 0.11-0.65) and those with mobility disability (AOR 0.51, 95% CI 0.30-0.88). Compared to those without disabilities, those with disabilities were significantly more likely to consult a health care provider for health information in both actual (OR 2.21, 95% CI 1.54-3.18) and hypothetical situations (OR 1.80, 95% CI 1.24-2.60). Trust toward health information from the internet (AOR 3.62, 95% CI 2.07-6.33), and willingness to exchange via IT medical information with a provider (AOR 1.88, 95% CI 1.57-2.24) were significant predictors for seeking and exchanging such information, respectively.
A potential digital gap may exist among US adults with disabilities in terms of their recent use of the internet for health information. Trust toward health information sources and willingness play an important role in people's engagement in use of the internet for health information. Future studies should focus on addressing trust factors associated with IT use and developing tools to improve access to care for those with disabilities.
残疾影响着五分之一以上的美国成年人,残疾人士在获得医疗保健方面面临多重障碍。数字鸿沟被定义为因使用先进技术的能力差异而导致的差距,人们认为这在残疾人士中普遍存在。
本研究调查了残疾与获取健康信息时信息技术(IT)使用之间的关联,以及信任因素与IT使用之间的关联。我们假设,与无残疾的美国成年人相比,残疾人士通过互联网获取健康信息的可能性更低,更有可能向医疗保健提供者获取健康信息,并且使用IT与提供者交换医疗信息的可能性更低。此外,我们假设信任因素,如对健康信息来源的信任和交换健康信息的意愿,与IT使用相关。
主要数据库是2013年健康信息国家趋势调查第4周期第3轮(N = 3185)。残疾状况作为主要研究协变量,基于6个涵盖广泛病症的问题,包括行动能力、认知、独立生活、视力、听力和自我护理方面的损伤。研究协变量包括社会人口统计学因素、受访者对互联网和提供者作为信息来源的信任,以及通过IT与提供者交换医疗信息的意愿。研究结果是将互联网作为主要健康信息来源的使用情况、将医疗保健提供者作为主要健康信息来源的使用情况,以及使用IT与提供者交换医疗信息的情况。我们进行了多变量逻辑回归,以检验残疾与控制研究协变量后的研究结果之间的关联。使用完全条件设定的多重插补法来插补缺失值。
我们发现,存在任何残疾都与从互联网获取健康信息的几率降低相关(调整后的优势比[AOR]为0.65,95%置信区间为0.43 - 0.98),特别是对于视力残疾者(AOR为0.27,95%置信区间为0.11 - 0.65)和行动能力残疾者(AOR为0.51,95%置信区间为0.30 - 0.88)。与无残疾者相比,残疾人士在实际(优势比[OR]为2.21,95%置信区间为1.54 - 3.18)和假设情况(OR为1.80,95%置信区间为1.24 - 2.60)下向医疗保健提供者咨询健康信息的可能性都显著更高。对来自互联网的健康信息的信任(AOR为3.62,95%置信区间为2.07 - 6.33)以及通过IT与提供者交换医疗信息的意愿(AOR为1.88, 95%置信区间为1.57 - 2.24)分别是寻求和交换此类信息的重要预测因素。
在近期通过互联网获取健康信息方面,美国残疾成年人中可能存在潜在的数字鸿沟。对健康信息来源的信任和意愿在人们使用互联网获取健康信息的过程中起着重要作用。未来的研究应侧重于解决与IT使用相关的信任因素,并开发工具以改善残疾人士获得医疗服务的机会。