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["Self-help potential of the family" can overtax the abilities of the marital partner. Report on a family group of Huntington chorea patients].

作者信息

Leimkühler A M

出版信息

Psychiatr Prax. 1987 May;14(3):78-83.

PMID:2955442
Abstract

The following study on family groups of patients with Huntington's chorea shows the changed psychosocial life patterns resulting from the disease of the marriage partner, as seen from the viewpoint of the other partner. It is evident that "family groups" are not necessarily self-sustaining, and cannot manage the additional strain without outside help; as a matter of fact, the limits of familial self-help become very apparent if the partner cannot cope with the burden. In this manner, family groups actually emphasise and underline the need for external social support.

摘要

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引用本文的文献

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Quality of life in couples living with Huntington's disease: the role of patients' and partners' illness perceptions.亨廷顿舞蹈症患者夫妇的生活质量:患者及伴侣疾病认知的作用
Qual Life Res. 2007 Jun;16(5):793-801. doi: 10.1007/s11136-007-9194-4. Epub 2007 Mar 21.
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Living with Huntington's disease: illness perceptions, coping mechanisms, and spouses' quality of life.
与亨廷顿舞蹈症相伴:疾病认知、应对机制及配偶的生活质量。
Int J Behav Med. 2002;9(1):37-52. doi: 10.1207/s15327558ijbm0901_03.