Jefferies Philip, Gallagher Pamela, Philbin Mark
a School of Psychology , University of the South Pacific , Suva , Fiji.
b School of Nursing & Human Sciences , Dublin City University , Dublin , Ireland.
Disabil Rehabil Assist Technol. 2019 May;14(4):379-385. doi: 10.1080/17483107.2018.1451561. Epub 2018 Mar 20.
Research on prosthesis use is largely focused on understanding how persons manage the loss of a limb and begin their prosthesis use. We sought to elaborate an important aspect of a common concern of prosthesis users as they live day to day with their artificial limbs; specifically, the nature and management of threats that have implications for staying "just normal".
Grounded Theory methodology was employed to collect and analyse data from 24 interviewees, 17 weblogs, 17 autobiographies, and posts from four internet discussion forums.
Individuals that use prostheses are faced with a number of challenges and manage these through preservation strategies that ensure they stay "just normal". These acts of preserving include "black-spotting", "protective avoidance", "vigilant risk-reducing", "fail-safing", "conserving" and "sufficing" through "playing it safe" and "resisting the recommended".
Prosthesis users manage a range of threats that are related to the limitations of prostheses. Knowledge of these issues and how they may be resolved can empower and support individuals coming to prosthesis use as well as ongoing users. The findings of this study also have implications for developing the consultation experience through discussing applicable threats and strategies for managing these. Implications for Rehabilitation Specific threats faced by prosthesis users along with the varied ways that these are resolved enable a greater insight into life with a prosthesis. The consultation experience can be enhanced through a discussion of potential threats relevant to the person, their prosthesis, and the way they live or wish to live "just normally" with a prosthesis. Insights into how persons manage threats associated with prosthesis use can help professionals to recognize and suggest strategies that may further enable their clients.
假肢使用的研究主要集中在了解人们如何应对肢体缺失并开始使用假肢。我们试图阐述假肢使用者在日常生活中使用假肢时一个共同关注点的重要方面；具体而言，即对保持“正常状态”有影响的威胁的性质及应对方式。
采用扎根理论方法，收集并分析来自24名受访者、17篇网络日志、17本自传以及四个互联网讨论论坛帖子的数据。
使用假肢的个体面临诸多挑战，并通过一些保持策略来应对，以确保他们能保持“正常状态”。这些保持行为包括“黑点标记”“保护性回避”“警惕性降低风险”“故障安全保障”“保守”以及通过“谨慎行事”和“抵制建议”来“将就”。
假肢使用者应对一系列与假肢局限性相关的威胁。了解这些问题及其解决方式能够增强并支持初次使用假肢的个体以及正在使用假肢的个体。本研究结果对于通过讨论适用的威胁及应对策略来改善咨询体验也具有启示意义。对康复的启示 假肢使用者面临的特定威胁以及解决这些威胁的多种方式，能让人更深入地了解使用假肢的生活。通过讨论与个体、其假肢以及他们“正常地”使用假肢的生活方式或期望的生活方式相关的潜在威胁，可以提升咨询体验。深入了解人们如何应对与假肢使用相关的威胁，有助于专业人员识别并提出可能进一步帮助其客户的策略。
