Stone N
J Neurosci Nurs. 1987 Jun;19(3):166-73. doi: 10.1097/01376517-198706000-00009.
Amyotrophic lateral sclerosis (ALS) is a degenerative motor disease of unknown etiology with insidious onset and a progressive course. It interferes with a wide variety of patient motor activities, which may include those controlled by the lower cranial nerves--swallowing, speech, and respiration. Many health professionals should be involved early on to maintain an optimal quality of life for the patient and family. When possible, other supportive patients, families, and ALS groups should be contacted for emotional support and practical information. Nursing care should be adaptive, and the confidence of the patient maintained in a variety of settings. Research about ALS is often of vital interest to patients and may give them a purpose for living and hope for ultimate benefit to others. Final decisions regarding care should be made by the patient and his primary caregiver.
肌萎缩侧索硬化症（ALS）是一种病因不明的退行性运动疾病，起病隐匿，病程呈进行性发展。它会干扰患者的多种运动活动，这可能包括由较低级别的脑神经控制的活动——吞咽、言语和呼吸。许多医疗专业人员应尽早参与进来，以维持患者及其家人的最佳生活质量。如有可能，应联系其他给予支持的患者、家属和ALS团体，以获得情感支持和实用信息。护理应具有适应性，并在各种情况下维持患者的信心。关于ALS的研究通常是患者极为感兴趣的，可能会赋予他们生活的目标，并为最终造福他人带来希望。关于护理的最终决定应由患者及其主要护理人员做出。
