Mickens Melody N, Perrin Paul B, Aguayo Adriana, Rabago Brenda, Macías-Islas Miguel A, Arango-Lasprilla Juan Carlos
Department of Psychology, Virginia Commonwealth University, Richmond, VA, USA.
Department of Physical Medicine & Rehabilitation, Virginia Commonwealth University School of Medicine, Richmond, VA, USA.
Behav Neurol. 2018 Jan 17;2018:8929735. doi: 10.1155/2018/8929735. eCollection 2018.
Individuals with multiple sclerosis (MS), especially those living in Latin America, often require assistance from family caregivers throughout the duration of the disease. Previous research suggests that family caregivers may experience positive and negative outcomes from providing care to individuals with MS, but few studies have examined the unmet needs of individuals providing care to family members with MS and how these unmet needs may mediate the relationship between MS symptoms and caregiver mental health. The current study examined the relationships among MS impairments (functional, neurological, cognitive, behavioral, and emotional), unmet family needs (household, informational, financial, social support, and health), and caregiver mental health (satisfaction with life, anxiety, burden, and depression) in a sample of 81 MS caregivers from Guadalajara, Mexico. A structural equation model demonstrated the mediational effect of unmet family needs on the relationship between MS impairments and caregiver mental health. These findings suggest that intervention research on MS caregivers in Latin America may consider focusing on caregiver mental health problems by addressing unmet family needs and teaching caregivers ways to manage the impairments of the individual with MS.
患有多发性硬化症(MS)的人,尤其是生活在拉丁美洲的患者,在整个患病期间通常需要家庭护理人员的帮助。先前的研究表明,家庭护理人员在为MS患者提供护理时可能会经历积极和消极的结果,但很少有研究探讨为患有MS的家庭成员提供护理的人员未得到满足的需求,以及这些未得到满足的需求如何调节MS症状与护理人员心理健康之间的关系。本研究调查了墨西哥瓜达拉哈拉的81名MS护理人员样本中,MS损伤(功能、神经、认知、行为和情绪方面)、未得到满足的家庭需求(家庭、信息、财务、社会支持和健康方面)与护理人员心理健康(生活满意度、焦虑、负担和抑郁)之间的关系。一个结构方程模型证明了未得到满足的家庭需求在MS损伤与护理人员心理健康之间的关系中起中介作用。这些发现表明,拉丁美洲针对MS护理人员的干预研究可能会考虑通过满足未得到满足的家庭需求以及教导护理人员管理MS患者损伤的方法,来关注护理人员的心理健康问题。