Wilson Smith Marsha Gail, Sachse Karen, Perry Margaret T
1 Children's National Health System, Washington, DC, USA.
2 Shire, Inc., Lexington, MA, USA.
J Pediatr Oncol Nurs. 2018 Sep/Oct;35(5):368-374. doi: 10.1177/1043454218767872. Epub 2018 Apr 10.
Families of children, adolescents, and young adults with a new oncology diagnosis must absorb knowledge and skills needed to care for their child at home during a period of emergent hospitalizations and intense medical interventions. Effective nurse-led teaching and discharge planning begun at diagnosis can prepare families to safely care for their child following discharge, and be a source of satisfaction. The objective of this performance improvement initiative was to increase family and nurse satisfaction with new diagnosis education and discharge. Using standard performance improvement techniques, family and nursing stakeholder satisfaction with current processes was assessed. Working from established best practice and literature review; The Road to Home was designed and implemented. This novel, comprehensive program includes a visual, interactive display of required education based on the Children's Oncology Group Family Handbook and hospital specific discharge materials; standardized teaching, tools and documentation for nursing; and caregiver discharge tool kits. Stakeholder input guided improvement strategies throughout the phases of implementation. Sustained increases in family and nurse satisfaction resulted from each phase. The Road to Home program is established for all families of newly diagnosed oncology patients and is meeting goals of increased family and nurse satisfaction with discharge education.
患有新确诊肿瘤疾病的儿童、青少年和青年的家庭,必须掌握在紧急住院和密集医疗干预期间在家照顾孩子所需的知识和技能。从诊断开始由护士主导的有效教学和出院计划,可以让家庭为孩子出院后进行安全护理做好准备,并成为满意度的来源。这项绩效改进计划的目标是提高家庭和护士对新诊断教育和出院的满意度。使用标准的绩效改进技术,评估了家庭和护理利益相关者对当前流程的满意度。基于既定的最佳实践和文献综述,设计并实施了“回家之路”计划。这个新颖、全面的计划包括基于儿童肿瘤学组家庭手册和医院特定出院材料的所需教育的可视化交互式展示;护理的标准化教学、工具和文档;以及照顾者出院工具包。利益相关者的意见在实施的各个阶段指导改进策略。每个阶段家庭和护士的满意度都持续提高。“回家之路”计划已为所有新确诊肿瘤患者的家庭制定,并正在实现提高家庭和护士对出院教育满意度的目标。