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开发一种电子健康工具以支持患者在家中实现自我管理。

Developing an eHealth Tool to Support Patient Empowerment at Home.

作者信息

Schildmeijer Kristina, Wannheden Carolina, Nilsson Lina, Frykholm Oscar, Hellström Amanda, Flink Maria, Ekstedt Mirjam

机构信息

Faculty of Health and Life Sciences.

Department of Learning, Informatics, Management and Ethics, Karolinska Institutet.

出版信息

Stud Health Technol Inform. 2018;247:925-929.

Abstract

In previous research we have learned that patients with chronic or complex diseases often experience difficulties when transitioning from hospital care to self-care in their home. We address these difficulties by developing an eHealth tool for patients - ePATH (electronic Patient Activation in Treatment at Home) - intended to empower each patient to manage their individual situation. We have employed a user-centered design process involving both patients and healthcare personnel to specify the content and functionality of ePATH. The system is deployed as a web application with secure login for patients. In this article, we describe the main content and functionality of the system that makes it possible for a patient to manage symptoms development in relation to treatment progression Interactive functionality, e.g., reminders and social support, is included to make the ePATH a useful and informative bridge between patients, next-of-kin and different caregivers. One lesson learned is that it is necessary to incorporate motivational components in the development of an eHealth tool to successfully overcome the "intention-behavior" gap. The self-determination theory of motivation can be used to ensure that important aspects are not missed.

摘要

在以往的研究中我们了解到,患有慢性疾病或复杂疾病的患者在从医院护理过渡到家庭自我护理时常常会遇到困难。我们通过为患者开发一种电子健康工具——ePATH(居家治疗中的电子患者激活)来解决这些困难,该工具旨在使每位患者能够管理自身状况。我们采用了以用户为中心的设计流程,让患者和医护人员共同参与,以明确ePATH的内容和功能。该系统作为一个网络应用程序进行部署,患者可通过安全登录使用。在本文中,我们描述了该系统的主要内容和功能,这些内容和功能使患者能够根据治疗进展管理症状发展。系统还包含交互式功能,如提醒和社会支持,以使ePATH成为患者、亲属和不同护理人员之间有用且信息丰富的桥梁。我们得到的一个经验教训是,在开发电子健康工具时必须纳入激励因素,以成功克服“意图 - 行为”差距。动机的自我决定理论可用于确保不遗漏重要方面。

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