1 University College London Hospitals NHS Foundation Trust , London, United Kingdom .
2 Division of Theatre, University of Chichester , Chichester, United Kingdom .
J Adolesc Young Adult Oncol. 2018 Oct;7(5):572-578. doi: 10.1089/jayao.2018.0025. Epub 2018 May 9.
Discovering sexuality and romantic relationships are important development milestones in adolescence and young adulthood. A cancer diagnosis imposes obstacles for young people such as changes in their sexual function due to the disease and/or side effects of treatment, body image concerns, and interpersonal relationship difficulties. This can cause psychological distress and can impact on quality of life. We aimed to explore sexual health information and support needs of adolescents and young adults with cancer.
Five young people aged 16-24 years, with a previous cancer diagnosis when aged 13-22 years, attended an in-depth 4-hour workshop. The framework approach was used to analyze workshop transcripts.
Three overarching themes emerged: (i) information sharing; (ii) contexts and relationships (influencing factors); and (iii) information sharing preferences. Information shared by healthcare professionals was focused on a medicalized view of sex with symptoms, infection control, and protected sex at its core. Young people had unanswered questions related to sexual function, the impact of cancer and how to manage it, and about pleasure, body image, and relationships. Parents' presence at clinical consultations inhibited discussions about sex. Young people wanted professionals who were comfortable to talk about sex with them.
Young people exhibited significant unmet needs around information provision on sex, body image, and relationships. They wanted information to be given by professionals and access to online resources. Development of training for professionals and resources to support young people requires further work.
探索性行为和浪漫关系是青少年和青年时期的重要发展里程碑。癌症诊断给年轻人带来了障碍，例如疾病和/或治疗副作用导致的性功能改变、身体形象问题和人际关系困难，这可能会导致心理困扰，并影响生活质量。我们旨在探讨青少年和青年癌症患者的性健康信息和支持需求。
5 名年龄在 16-24 岁的年轻人，在 13-22 岁时被诊断患有癌症，参加了一个为期 4 小时的深入研讨会。采用框架方法对研讨会记录进行分析。
出现了三个总体主题：（i）信息共享；（ii）背景和关系（影响因素）；和（iii）信息共享偏好。医疗保健专业人员分享的信息侧重于性的医学观点，核心是症状、感染控制和保护性行为。年轻人对性功能、癌症的影响以及如何管理、关于性愉悦、身体形象和人际关系方面存在疑问。父母在临床咨询中的存在阻碍了关于性的讨论。年轻人希望与他们交谈时感到舒适的专业人员提供信息。
年轻人在性、身体形象和人际关系方面表现出显著的信息提供需求未得到满足。他们希望专业人员提供信息，并获得在线资源。需要进一步开展专业人员培训和支持年轻人的资源开发工作。
