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康复、教育以及重度脑损伤个体融入公民社会:迈向应对转化神经伦理学和神经科学新见解的扩展权利议程。

Rehabilitation, Education, and the Integration of Individuals with Severe Brain Injury into Civil Society: Towards an Expanded Rights Agenda in Response to New Insights from Translational Neuroethics and Neuroscience.

作者信息

Wright Megan S, Fins Joseph J

出版信息

Yale J Health Policy Law Ethics. 2016 Summer;16(2):233-87.

Abstract

Many minimally conscious patients are segregated in nursing homes, and are without access to rehabilitative technologies that could help them reintegrate into their communities. In this Article, we argue that persons in a minimally conscious state or who have the potential to progress to such a state must be provided rehabilitative services instead of being isolated in custodial care. The right to rehabilitative technologies for the injured brain stems by analogy to the expectation of free public education for children and adolescents, and also by statute under the Americans with Disabilities Act and under Supreme Court jurisprudence, namely the leading deinstitutionalization case, Olmstead v. L.C. ex rel. Zimring.

摘要

许多处于最低意识状态的患者被安置在疗养院,无法获得有助于他们重新融入社区的康复技术。在本文中,我们认为,处于最低意识状态或有可能发展到这种状态的人必须获得康复服务,而不是被隔离在监护护理中。获得脑损伤康复技术的权利源于对儿童和青少年免费公共教育的期望,也源于《美国残疾人法案》以及最高法院判例法,即具有里程碑意义的去机构化案件——奥姆斯特德诉L.C. 及相关方齐姆林案。

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