Kahonde Callista K, McKenzie Judith, Wilson Nathan J
a Disability Studies Division, Department of Health and Rehabilitation Sciences , University of Cape Town , Cape Town , South Africa.
b School of Nursing and Midwifery , Western Sydney University , Richmond , NSW , Australia.
Cult Health Sex. 2019 Mar;21(3):278-292. doi: 10.1080/13691058.2018.1465202. Epub 2018 May 30.
Although most people with intellectual disability remain under the lifelong care and support of their families, there is a hiatus in research that explores the sexuality of people with intellectual disability within the family setting. Little is known about how the responses of family caregivers align with a human rights approach to the sexuality of people with intellectual disability, particularly in the South African context. This study used a constructivist grounded theory approach to explore how 25 South African family caregivers responded to the sexuality of their young adults with intellectual disability. Findings revealed that family caregivers prioritise what they deem as being the immediate needs of themselves and the young adults, over the young adults' rights to sexual autonomy. Practitioners, guided by the human rights approach, need to understand the individual and family context so as to better collaborate with family caregivers in supporting people with intellectual disability to realise their sexual rights. We apply two theories of needs to illuminate the conflict between needs-centred ethics and human rights approaches in a context where the family caregivers are the ones determining the sexuality needs of young adults with intellectual disability.
尽管大多数智障人士一生都在家人的照料和支持下生活，但在家庭环境中探索智障人士性取向的研究却存在空白。对于家庭照料者的反应如何符合以人权为导向的智障人士性取向观念，尤其是在南非背景下，我们知之甚少。本研究采用建构主义扎根理论方法，探究25位南非家庭照料者如何应对其智障成年子女的性取向问题。研究结果显示，家庭照料者将他们认为自身及成年子女的紧迫需求置于成年子女性自主权利之上。以人权为导向的从业者需要了解个人和家庭背景，以便更好地与家庭照料者合作，支持智障人士实现其性权利。我们运用两种需求理论，以阐明在家庭照料者决定智障成年子女性需求的背景下，以需求为中心的伦理与以人权为导向的方法之间的冲突。
