Department of Psychological Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
Child and Family Unit, Starship Hospital, Auckland District Health Board, Auckland, New Zealand.
PLoS One. 2018 May 30;13(5):e0198241. doi: 10.1371/journal.pone.0198241. eCollection 2018.
Mothers with severe mental illness are vulnerable and engage with services cautiously due to fears of stigma and custody loss. To develop best practice standards and patient-centred services, the subjective experience of those who use it must inform service improvement and policy.
This study utilised exploratory concurrent mixed methods design with primarily qualitative data. Women admitted between April 2015 and December 2016 to a newly developed psychiatric Mother Baby Unit (MBU) in New Zealand were invited to participate in this study. Qualitative data were collected in three ways: (i) semi-structured interviews incorporating Māori concepts of health and wellness by research assistants near discharge; (ii) invitation to provide anonymous feedback in writing using an open format; (iii) unsolicited verbal feedback provided during a home visit three months after discharge. Thematic analysis was undertaken. Demographic and clinical information was collected prospectively for mother-infant pairs during the course of admission and three months post-discharge.
Forty-five people participated in the study. High rates of satisfaction were described. Strengths of the service-as perceived by mothers-included co-admission of mother and infant, staff warmth and availability, transparent practice, inclusion of families, and having a comfortable environment. Mothers described intense distress and confusion, as well as negative self-perceptions when acutely unwell. Infant co-admission and the inclusion of partners and other family members alleviated mothers' distress. Personal attributes of staff, practical support with caregiving, a range of therapeutic approaches and holistic care were all valued. Feedback collected three months after discharge was the most reflective. Significant inter-ethnic differences were not apparent.
The experience of inpatient care can have lasting influence on recovery and wellbeing. Employing a Māori model of health broadened the holistic nature of enquiry. The approach and timing taken in seeking the views of participants' yielded different information, all of which is of value to service evaluation and refinement. The findings suggest that keeping mothers and infants together during health service utilisation such as MBUs should be a priority for policy makers and service designers. This approach is consistent with Māori values, combining the importance of whānau relationships (kinship), wairua (spiritual connectivity), hinengaro (the mind) and tinana (physical health). These findings suggest that 'holistic care'-in this case following a Māori holistic health model-is important in mental health settings.
患有严重精神疾病的母亲由于担心受到污名化和失去监护权,往往很脆弱,并谨慎地使用服务。为了制定最佳实践标准和以患者为中心的服务,必须让实际使用者的主观体验为服务改进和政策制定提供信息。
本研究采用探索性同期混合方法设计,主要采用定性数据。2015 年 4 月至 2016 年 12 月期间,新西兰新成立的精神病母婴单位(MBU)收治的女性被邀请参加这项研究。定性数据通过三种方式收集:(一)研究助理在出院前采用包含毛利人健康和幸福概念的半结构化访谈;(二)邀请以匿名形式用开放格式提供书面反馈;(三)出院后三个月进行家访时,主动提供口头反馈。采用主题分析方法。在住院期间和出院后三个月,对母婴对前瞻性收集人口统计学和临床信息。
共有 45 人参与了这项研究。描述了较高的满意度。母亲认为该服务的优势包括母婴共同住院、工作人员的热情和可用性、透明的实践、家庭的包容以及舒适的环境。母亲们在急性发病期间描述了强烈的痛苦和困惑,以及负面的自我认知。母婴共同住院以及伴侣和其他家庭成员的参与减轻了母亲的痛苦。工作人员的个人特质、照顾方面的实际支持、各种治疗方法和整体护理都受到重视。出院后三个月收集的反馈意见最具反思性。没有明显的种族间差异。
住院治疗的经历会对康复和幸福感产生持久的影响。采用毛利人健康模式拓宽了整体探究的范围。在寻求参与者意见时所采用的方法和时机产生了不同的信息,所有这些对服务评估和改进都具有价值。研究结果表明,在利用 MBU 等卫生服务时,让母亲和婴儿呆在一起应该是政策制定者和服务设计者的首要任务。这种方法符合毛利人的价值观,将家庭关系(亲属关系)、精神连接(精神连接)、思想(思想)和身体健康(身体健康)的重要性结合在一起。这些发现表明,在心理健康环境中,“整体护理”——在这种情况下是遵循毛利人整体健康模式——很重要。